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    Knee trouble

    This evening, on the way back to my chair from the toilet, my legs decided that they weren’t going to play nice any more. I was still about 8 feet from my chair when they wobbled. My husband tried to help, but I ended up in a heap on the floor with my legs bent at awkward angles. The left leg seems okay, but my right knee is swollen and sore. I can’t bend it to get comfortable.

    As an added bonus, since I’m not ambulatory, I had to contact the visiting nurses to have a catheter put in. Neither the bathroom nor my bedroom door will accommodate the lift easily.

    This time last year I was happily working in the kitchen, making Tiramisu for my husband’s birthday. Sigh.
    Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

    #2
    Maria C I’m so sorry to hear that you’ve hurt your knee. It sounds painful! I hope it’s just bruised and the swelling goes down quickly. It must be disappointing to have to get a catheter, I’m sorry 😩
    I’m sure getting the nurse care will be a feat, as things move so slowly here in Ontario.
    Sending hugs your way! 😘❤️

    Comment


      #3
      Sorry to hear that Maria.

      Originally posted by Maria C View Post
      ... my right knee is swollen and sore. I can’t bend it to get comfortable.
      If the knee doesn't improve with ibuprofen, rest, ice and elelvation, you may need an X-ray or scan 😬

      Sending you healing thoughts xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      Comment


        #4
        Ellie Thank you.

        I’m a bit concerned about trying to get a scan or x-ray done. Transportation to the hospital will be a problem, and then waiting around sitting in my wheelchair. I can’t really bend the knee so I’d be in agony.

        I’ve been promised a visiting nurse (nurse practitioner) to assess it here at home. Even with ibuprofen and ice, it’s the size of a small cantelope.




        Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

        Comment


          #5
          Maria C ouch sounds nasty. I slipped 2 years ago on wet ground and my leg ended up in the wrong position. I ended up at a & e for an x Ray. Luckily for me it was a bad pull of the cruciate ligament.
          but I remember I couldn'coget comfy.

          I'm hoping the nurses look after you and you can find a comfortable position x
          Diagnosed May 2021 bulbar onset als.

          Comment


            #6
            Maria C Sorry to hear that....must be so painful. Could you use a commode temporarily until you can access the bathroom again.

            Hope you heal soon💙🙏😘
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

            Comment


              #7
              shelly21 The nurse will be around on Wednesday morning to look at my knee. I was lucky to get someone out on a Sunday to put in the catheter. I live in a semi-rural area and visiting healthcare workers are thinly spread.

              Only a badly pulled cruciate ligament? We use the word “only” a bit lightly. Ouch.

              LindaB My husband went out and bought a wheeled commode today. I got the idea from Ellie in another post. At least I’ll have some options when my knee stops hurting enough that we can lift me without seeing stars.
              Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

              Comment


                #8
                AngieCanuck Thankfully a nurse did make it last night to put in the catheter. I’d have been screwed without it. I can’t weight-bear on this knee and I could only walk about 20 steps at a time before I fell. Right now I’m wheelchair bound and haven’t the strength to transfer without using the Hoyer lift. This house is not equipment friendly.
                Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

                Comment


                  #9
                  Maria C Fingers crossed it’s just a sprain or a strain 🤞🤞🤞 x
                  Foxes Never Quit 💙

                  Comment


                    #10
                    Maria C was the nurse able to have a look at your knee? Has the swelling or pain been relieved? I wonder if you shouldn’t email/phone Barb at the clinic to see if she could expedite an X-ray?

                    Comment


                      #11
                      Maria C

                      I hope the knee has improved. Great that you could get a commode. We found it a very useful piece of equipment.

                      All the best
                      Donna

                      Carer for husband Thomas, diagnosed with MND of Fail Arm Type in July 2020.

                      Comment


                        #12
                        AngieCanuck the nurse on Sunday was an RPN. Pretty sure that looking at my knee was above her pay grade. And it wasn’t that bad when she was at the house. Swelling got worse later in the evening.

                        The nurse practitioner will be out tomorrow.

                        I dread the thought of having to leave the house. I can’t transfer, so our car is out of the question. We have very limited options for wheelchair accessible transportation out my way. I’ll cross that bridge tomorrow, if the nurse thinks I need to go in.

                        Barb is a sweetheart and quite efficient, but even she can’t make my local hospital less of a ****-show.
                        Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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