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    With the summer coming i am thinking about sandals but is it a good idea as i am just about shuffling with a frame? Advice please.
    Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes

    #2
    I really think it depends on the sandals. Last summer I was still shuffling around outside the house. I simply can not tolerate my toes scrunched up so closed toe shoes are a nightmare to put on.

    We found me a pair of Teva sandals where both the foot and ankle straps were adjustable. The soles were rubber, therefore nonslip. They aren’t the prettiest things but they worked for me.
    Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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      #3
      Hakuna Have you a podiatrist? I found out last year that they're not all about toes 😃

      I guess safety is paramount, that includes heel height and form, sole grip, foot stability, as well as how you actually lift your foot and a podiatrist should be able to advise you on that.

      Failing this, I guess you need to think about the above factors and hopefully make an informed decision - I've a feeling it'll be be like a Scholl-type sandal than a Jimmy Choo 😬 or a summer shoe.

      I did wear a fairly flat sandal the first summer after my diagnosis - flexible enough, grippy soles with adjustable straps across the front of the ankle and across the lower foot, not the height of fashion but did the job. (obvs I don't know the then-me compares to the now-you in walking ability)

      Have you seen any sandals you like and think suitable? xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
      .

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        #4
        I haven’t yet. I thought walking sandals might work. I don’t have a podiatrist but will ask the hospice. Thank you folks.
        Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes

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          #5
          Originally posted by Hakuna View Post
          I thought walking sandals might work.
          Walking sandals, yes 👍 that's what mine were, I couldn't think of what to call them 🙄 xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
          .

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