No announcement yet.

Still no chair ... and on it goes

  • Filter
  • Time
  • Show
Clear All
new posts

    Still no chair ... and on it goes

    So it goes on. Sat here with no care chair if that's the right word was told as per my previous post that the association were sorting it out but nothing. ​​​​​​Busy June ahead developed a eye problem ( not mind related) Then a refit for leg brace as the ones that came are too small and tight followed by meeting with consultant. I know 🥺 I am moaning but sometimes it just gets to you. Love and light as always to you all as we continue this battle with a terrible illness. Xx

    Derbyram21 - sometimes it feels like an endless uphill struggle through treacle doesn't it?

    If you can't air your frustrations here then where can you? I think we can all relate to feeling overwhelmed by things not going to plan.

    Hopefully it will soon fall into place for you x
    Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

    Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

    Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.


      Derbyram21 I'm number 1 moaner! It does get to us when we look forward to things that make our lives better. Hope it arrives very very soon 🙃🤩
      Diagnosed May 2021 bulbar onset als.


        Derbyram21it does get like that at times and you just need to let off steam x I do hope your chair arrives soon x



          Originally posted by Derbyram21 View Post
          I know 🥺 I am moaning but sometimes it just gets to you.
          You're a very restrained moaner, especially amongst us 😏 - I hope you're annoying the pants off the OT for the chair at this stage, I know you shouldn't have to, want to, nor have the energy to but squeaky wheels get oiled... xx

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.