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  • Heather R
    replied
    Thanks everyone, I have asked to give it a go xx

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  • Ellie
    replied
    Originally posted by Hope View Post
    I have trouble keeping my mouth closed now. I am not sure if that is down to being congested or another ‘symptom’.
    For me, it's because my jaw muscles are weak but a congested nose would do it too. xx

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  • shelly21
    replied
    Ellie definitely 👍. X

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  • Ellie
    replied
    Originally posted by shelly21 View Post
    Its not vanity but being a little more at ease when socialising etc
    Let's face it... We need all the help we can get 😏 Anything which can lessen the elephant look or stop people thinking we're off on for a walk in space has to be welcomed 😉😁😘

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  • Ellie
    replied
    Originally posted by Heather R View Post
    ... she said I could try but sometimes it's difficult to keep your mouth shut.
    First of all Heather, you should definitely try a nasal mask (there is more than one type) and see how you get on with it.

    My experience is: my jaw muscles are weak so when my head is on the pillow in bed, my mouth doesn't close meaning a nasal mask isn't an option for night use - the mask I use holds my mouth closed.

    I tried them during the day when my jaw doesn't hang open that much and I could wear nasal pillows successfully, however, I didn't find it that comfortable at the time. (There are better nasal options available now)

    As I said on the other post, sometimes the NIV settings are different for the day V night and it's not so 'blowy' for when a person it sat upright and/or using a nasal mask.

    Hope it works out for you. xx

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  • shelly21
    replied
    I'm the other way Hope. I have my mouth closed all the time. On my nebuliser I have to remind myself to open my mouth. X

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  • Hope
    replied
    I am not yet using NIV but am interested in this for when the time comes but I have trouble keeping my mouth closed now. I am not sure if that is down to being congested or another ‘symptom’. x

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  • shelly21
    replied
    I'm interested so following. Although I don't need day niv yet I also think of how I'm perceived. Its not vanity but being a little more at ease when socialising etc x

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  • Heather R
    started a topic nasal pillows

    nasal pillows

    I think I remember Ellie recommending these recently, but just can't find the post now. Now I am using my ventilator more in the day, I am having to face using it with other people, but I look pretty freaky with my over mouth and under nose mask, with a tube coming out of the top of my head. So I asked my respiratory physio about having nasal mask, she said I could try but sometimes it's difficult to keep your mouth shut. Wondered what anyone's experience of this is? Thanks x
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