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  • Olivia H
    replied
    TinyLady 🀣 I sometimes think our sense of humour, along with resilience, is the defining feature of mnd x

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  • GillB
    replied
    TinyLady

    That did make me laugh and boy do we need to!

    Glad you are now more comfortable in bed and your wheelchair. I am sure it will make a huge difference to you.

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  • Doug Carpenter
    replied
    Not only Matthew.......

    Doug x

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  • shelly21
    replied
    πŸ˜…πŸ˜…πŸ˜…πŸ˜…

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  • TinyLady
    replied
    Ellie - yes I think our technician is quite good here (Wheelchair services here and orthotics have provided fantastic service) maybe because they are a private company contracted by the local NHS?

    I think I needed something easier to grip rather than a change in sensitivity. Certainly the golf ball allows more fingers to help out and I feel more comfortable holding it.

    Who doesn't like a knob with a reasonable girth.... sorry... couldn't resist. I hope Matthew looked down and had a chuckle, I miss his jokes xx

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  • Ellie
    replied
    The wheelchair technicians don't always advertise this, but the joystick sensitivity can be tweaked on most drive controls, making it more responsive for less manual effort. πŸ‘πŸ‘

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  • TinyLady
    replied
    Yes, I love my wheelchair. In the 5 months since I got it I have become totally dependent on it, but travelled so many miles in it!! It was so squeaky and needed oiling!

    Feeling much more comfortable on the new cushion today. The golf ball is so much easier to manipulate than a small joystick too.

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  • Tony
    replied
    Great to see you are getting things sorted. The wheelchair actually provides a real sense of independence but it has to be comfortable. The problem is you don’t know until you’ve been in it a while. The golf ball control sounds good, I might ask for one. Fingers crossed for good weather so we can get out and about.

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  • Tabbycat
    replied
    TinyLady that's great news πŸ˜€ πŸ‘

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  • TinyLady
    replied
    shelly21- yes, feeling more comfortable is so important. I was surprised how much the topper has helped.

    Ellie - we did have to sacrifice leg support, but the calf strap helps a bit and one leg is still fairly competent. I'll be interested to see if my bottom requests the luxury Jay upgrade when the time comes 🀣
    but for now air tea bags are good!

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  • Ellie
    replied
    I tried a few of the Jay cushions and only one suited me, turned out it's their most expensive one - it's nice to know that I've a discerning bottom 😏

    I'd a Vicair for a while before my Jays and found it good until my legs needed more support than it could provide - enjoy sitting on teabags of air 😘😘

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  • shelly21
    replied
    TinyLady thats bloody brilliant. Bed and bum sorted πŸ™ƒ. Its lovely seeing things going your way for once. Please update how the vicair is once worn in etc. X

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  • TinyLady
    replied
    So they initially gave me a Jay cushion with a gel pad in it. But it was not right. I sat on it while they were working on the wheelchair. Eventually I said, my bottom is still numb. I'm not comfortable...

    So they got a Vicair cushion. It's a bit like a beanbag and is full of little individual air bags... looks like it should be uncomfortable, but I liked it. The OT said some people love them and others hate them. I'm going to see how I get on, but seems ok so far. The gel was still too hard on my bottom 🀣

    I'm also getting on very well with my repose bed topper. Back to long deep sleep.

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  • shelly21
    replied
    TinyLady woo hooo a result. Also I would like to know what seat pad you have. I get really bad nerve pain in one of my bum cheeks x

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  • Ellie
    replied
    That's great news indeed Tiny - any idea what seat cushion you have? xx

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