Falling over

[Heather R]

Oh Tony and Denise that sounds so awful. Why did we have to get MND when the nhs is in the state it’s in. Well done you for coping xx

[Tony]

Oh dear Denise, I now know just how you feel. It is very difficult and us MND suffers rely so much on our carers, but who do you turn to. It seems if it’s not immediately life threatening you’re on your own!

[denise]

Falling over is the biggest worry I have concerning my husband. We have external and internal stairs and a stairlift for the main flight of stairs. Thing is he still falls. His balance just goes and that's it he doesn't even trip over anything. Then the wait for an ambulance. The longer he is on the floor the more detrimental to his recovery. The other day he was walking from his bed and around the bottom of my bed. His balance went he started walking faster and he crashed into the wall. Luckily I was running right behind him, swung him onto my bed and managed to get my knee under his bum and got him up and onto my bed. Got him into a sitting position and got him back into his bed. I phoned community nurse as I was told to phone them if I have a problem I thought he should be checked over but apparently we don't have one allocated strange as weve been seeing one pretty much monthly. So I phoned GP surgery and told he should go to A&E I said I can't get him out of bed never mind out of the house. They said someone will phone tomorrow but if he has problems to phone for an ambulance!! Perhaps because of his mnd and ftd they will take that into consideration - oh no they don't weve waited 5-6 hours before now with no help. Seriously I don't know what we are supposed to do. If we just left someone on the floor there would be suggestions of neglect and yet when we need help there's no one. 😐

[shelly21]

Tony oh thats an awful night. Glad though no injuries. You will be exhausted today so hope you are catching up on some sleep. X

[Tony]

Ok it was bound to happen eventually, I’ve had a few near misses. Last night I just stood up to go to bed, somehow caught my foot on the rug, tottered backwards and went down like the proverbial sack of spuds. Miraculously I didn’t do myself an injury but ended on the floor with no way of getting back up 😟. We had to phone an ambulance and was told it would be 6 hours! After 7 hours we phoned again and was asked if anyone else could help us. It was now 6:30am so we phoned our son. We were worried about how safe this would be but with the help of a handling belt he got me on my feet 😊. Anyway I survived to see another day.