Sunshine, heat and no socks day ππ. Seriously heaven. Even hotter tomorrow then back to totes.
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Diagnosed May 2021 bulbar onset als. -
shelly21- I love the heat. Weirdly my left foot was still blue, ice cold and very swollen. But the rest of me enjoyed being warm and free of loads of bulky clothes πDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive! -
TinyLady I hate the cold feet bit. My blue bits are my knees! Circulation dire. It is going to be mega hot today but back to socks, coat, shawl, blanket tomorrow π€£xDiagnosed May 2021 bulbar onset als.Comment
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One of the first things I noticed with my condition was I didnβt like the cold. More hot days please πComment
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Stephen wont part with his clothes, I'm fibbing he didn't want his jumper on. Hes very keen his feet are covered during the night incase they get cold he certainly won't give his socks up. I suggested shorts today but I got a funny look.when i can think of something profound i will update this.Comment
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Denise he will melt! Oh well creature comforts it is for Stephen.
Tony yes feet and hands for me. I have a foot spa and I just love it. I miss my bath so much.Diagnosed May 2021 bulbar onset als.Comment
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If he melts I won't have to give him a shower! Result!!!π€£when i can think of something profound i will update this.Comment
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Hubby is always hot, weird hot patches that move around. Never has bed covers on or socks.
Neurologist said to do with overactive nerve endings. He is finding the heat unbearable. Plenty of fans on. its like being in a wind tunnel.
Downside is the insects biting him, the wind keeps blowing the citronella candles out!Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicated with eye gaze
Sense of humour intact throughout.
Sadly passed away peacefully 2/9/22Comment
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MMG I swear by citronella oil. You can put few drops in water spray bottle and spray on legs etc. Keep the critters away.
Diagnosed May 2021 bulbar onset als.Comment
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Ooh must try, better not splash hot candle wax on him though πOriginally posted by shelly21 View PostCarer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicated with eye gaze
Sense of humour intact throughout.
Sadly passed away peacefully 2/9/22Comment
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Even my naked little tootsies were too hot outside after lunch and sent me indoors for a while ππ
Honestly, I'd prefer a 'pleasant' 22deg for sitting out in the sunshine to stop me melting in the wheelchair ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Typical brit. Going on about the weather. Too hot, too cold. π€£when i can think of something profound i will update this.Comment
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I am LOVING this heat π€£
(Not very red head compatible though, but who cares!)Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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Its 35 here in Spain and I still have my socks on !! I'm not wearing much else but my feet are always cold π€£ ( I have given up my fur lined ones !)
Sometimes i see people looking at my feet but i think you stick to your flip flops and I'll stick to my socksπ§¦π§¦π§¦ !!! Xxππ€Comment
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