At last I have been able to put my summer dresses on.However my hubby didn’t seem impressed. He has to take me to the bathroom, several times a day, sort out my undies and usually a pair of trousers. What’s the problem, I asked. He said holding my dress up and pulling my undies down wasn’t easy.Then he came in holding a peg . He was so pleased that a simple little peg , to clip my dress up and out of the way.A little win for once.
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Little wins are so important, even if its just finding a new and easier way of doing things.
My hubby has to help me in the loo like yours LesleyB. Loose dresses and wearing no knickers really helps ( would have been his dream at one point 😅!)
I'm going to keep a peg handy too xxx 😘🤗
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I'm in my dresses... totally understand the breeze advice 🤣🤣🤣Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.
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Originally posted by denise View PostIts difficult to look elegant when you are hanging onto your frock!!Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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