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    Wetroom started today!

    Finally, after 6 months of chaos and going in circles they started my wetroom today.

    Slightly awkward as I woke to 4 builders in my bedroom (they are converting my ensuite) at 8am. My carer doesn't arrive until 9am, so I just watched the goings-on from my bed 🤣

    Not sure where I will wash or dress for the next three weeks.... already feel a bit stressed and overwhelmed, but can't wait to have a shower safely again 🙂
    Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

    Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

    #2
    Hope the next 3 weeks pass quickly, it'll be great when it's done and you can shower safely.

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      #3
      Claireflo - thank you. I'm both excited and a bit stressed. But it will make a massive difference. And I might get to enjoy my early morning builder visitors. Do you think they will bring me up a hot drink? 🤣
      Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

      Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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        #4
        TinyLady I am not sure of circumstances or if this is feasible but would you be able to get taken to a local leisure centre so you could use their shower washing facilities whilst the building work is ongoing? They usually have disabled access showers? x
        Diagnosed June 2022. Confirmed MND. Limb onset. Symptoms started November 2020.

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          #5
          It will be worth it TinyLady when you can shower safely and in comfort.

          It is really hard, however having work people in your home when you need privacy. Hopefully they will respect this and you can tick off the days. In the meantime online shopping for shower gel and candles for your wetroom. Xx😘🤗

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            #6
            It will be stressful but the end result will be so worth it. Don't like your chances of them bringing you a hot drink tho 🤣

            I had 22 weeks of bungalow renovation (to increase living space, increase bathroom, put a new kitchen in and an outside patio with ramps - with the aim of making life as easy as possible for my husband who uses a wheelchair. It was highly stressful with dust and constant banging but so worth it in the end.

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              #7
              It will be sooo worth the hassle TinyLady - hopefully they'll be done a few days early 🤞🤞

              Any eye candy or do you only get to see somewhere to park a bike 😉😏

              Add some nice new fluffy towels to that shopping list xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                Haha 😂 I had the same question as Ellie….any of the builders fit? It might make a nice start to each morning. 🤭

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                  #9
                  Awww, your comments have made me smile. Like the idea of some online shopping to distract me from the banging and get me some new "must have" accessories 😆

                  Claireflo - that is some serious work!! My wheelchair is sadly stuck downstairs. When I can no longer use my stairlift I will stay upstairs and abandon it. But hoping that is a long way off!

                  If the weather stays warm I think my hubby assumes a hose in the garden will suffice for washes in the next 3 weeks 🤣 but good idea to go elsewhere if I am struggling.

                  And finally, the builders are lovely, but I don't think my husband feels in the least bit threatened 🤣🤣🤣
                  Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                  Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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                    #10
                    While the weather is nice they can wheel you into the garden and hose you down 😎. Hope it all goes well and you are soon showering your posh new wet room.

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                      #11
                      Tony - exactly what my hubby says.... although when he first suggested it in February I was less keen 🤣
                      Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

                      Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

                      Comment


                        #12
                        Good luck with the wet room, will be fab when it's done. We are in the process of doing ours too. xx
                        Lost my lovely husband on 31.12.22, diagnosed with ALS on 15.12.21.
                        Alison ♥

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                          #13
                          Will make life a lot better😊

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                            #14
                            Fit builders! Ladies - what are you like

                            Hope it all goes well - we really need to get our building project started.
                            Hi, I'm Eddie.
                            Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                            Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                            Still wondering what the future will bring.

                            Comment


                              #15
                              Originally posted by WheelsOfSteel View Post
                              Fit builders! Ladies - what are you like
                              For starters, we ain't no ladies 🤣🤣🤣
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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