Decent book

[Arcadian]

I found this small paperback to be really useful and well written:-

Motor Neuron Disease - the facts
by Kevin Talbot & Rachael Marsden
(Oxford University Press)
ISBN 978-0-19-920691-9

[Claireflo]

Thanks for sharing, I'm keen to know more about MND so will look for a copy.

[shelly21]

Professor Talbot gave me my 2nd opinion. Rachel was lovely. Might have to read that one. Cheers 🍻

[TinyLady]

Yes, shelly21 Professor Talbot was my 2nd opinion too. I think he is extremely experienced.

[Doug Carpenter]

He is. They both are.

Thanks for the heads up.

Doug

[shelly21]

TinyLady could you ask your gp to be referred to Oxford. They will then give you support and also manage your local teams? Honestly your gp can't help you but he/she can referred you to another neuro. Isn't worth a try. Xx

[TinyLady]

shelly21 - I am under Oxford but not got any real contact with them. An appointment every 6 months is all. But I have emailed Rachael Marsden and begged for an appointment and told her I'm feeling scared and unsupported.

Let's hope they can fit me in some time soon.

[shelly21]

TinyLady Rachel was great with me. Let's hope they help. I do worry about you x

[TinyLady]

shelly21- thank you. I am (as is my husband) extremely worried. Not so much the MND itself, but the lack of care and my complex allergies that are being ignored.

I really hope I am taken seriously. I'm nearly out of options xx