Hi everyone the journey continues as it does for us all ! I wish we could all say it's enjoyable ..it isn't... So we're am I at now stiffness and fatigue are now my enemy also twitching in the cheeks ( does feel like my face has tightened) visited consultant couple of weeks ago and increased baclofen plus zapain given as l suffer from arthritis to add to my mix
breathing not too bad getting on with niv and been referred to Hospice which to me is sort of a big step don't know why just is. They said they offered massage only hope it's not like my last which was akin to a Turkish Massage 
he laughed when l told him this ! Each day a challenge as is trying to stay positive with this crappy dreadful illness. Love and light to you all x



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