Peter Pan

[Ellie]

It breaks my heart to say that we have lost our much-loved forum member, Peter, who died last week.

Peter had become heavily dependent on NIV and took the decision to go into his hospice last week and withdraw from using NIV as, in his own words, “I feel so unwell with MND that this will be the right time for me.”

Condolences to his lovely wife Sue and to his family.

Peter blogged about living with MND - if anyone would like to take a look, click Peter’s blog

Love Ellie xx

[denise]

Oh no. Such sad news.

Love to his wife and family. Peace at last.

💔

[Zante]

Oh no am so sorry to read this. Really sad news. Thanks Ellie for letting us all know. Condolences to his family and much love xxx

[Hope]

I am so sad to read this. I have received some valuable advice from Peter and will be forever grateful to him. Thank you for letting us know Ellie. Sending love and condolences to Peter’s family. RIP Peter. xx

[Bowler]

Such sad news. RIP Peter Pan. At rest in never never land. Condolences to all the family and his many forum friends.

[shelly21]

Very sad news. I did notice Peter wasn't posting. He was so in check with the reality of this disease. By reading his blog it pushed me to tidy up my affairs etc. I really thank him for that.

Much love goes out to his family x

[TinyLady]

So ery sad to hear this. Thank you for letting us know Ellie. I send love to all his friends and family and hope they can cherish memories of easier times x

[Maria C]

Condolences to his wife and family. 💐

I found his blog to be full of useful information and well written. I’m going to miss seeing him post here.

[GillB]

Such sad news as he was so ready to help others with his advice and wonderful blog.

My condolences to his family.

RIP Peter

[Claireflo]

I'm sad to read this, I'd noticed that Peter hadn't posted recently but had wrongly assumed he was having difficulties with technology.

Peter spoke openly about the effects of the condition and that whilst becoming increasing dependent on NIV was clearly hard it gave him the right to decide when it was the right time for him.

I'm glad to see he was finally able to enjoy his garden through using the new ramp and he had a number of happy occasions recently.

My thoughts are with Peter's family and friends and thanks to Ellie for letting us know

[Tabbycat]

Such sad news, thank you for letting us know Ellie.
I too have benefited from reading his blog.

My thoughts are with his family and friends x

[Deb]

Such very sad news. My thoughts are with Peter's family and friends.

Thank you for letting us know Ellie . I found his blog so informative and realistic. He seemed to face each challenge with stoicism and take pleasure in what he was still able to do.

RIP Peter xxx

[MMG]

So sorry to hear this.

Sending love to his family and friends.


xxx

[Banned]

Brave man Peter. Enough is enough. RIP x

[Helen212]

Peter Pan was really kind to me. (Yes I’m as yet undiagnosed) but asked advice early in symptoms and he messaged me. He worked for CAB in his later years I believe, and was very kind and knowledgable.

So sad for his family, my thoughts are with them.

Sad to hear this news RIP Peter, your blog was inspirational