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    hi

    does anyone else suffer with ice cold feet & bottom of legs, I just cannot keep them warm

    #2
    Hi Maz,

    It is uncommon when it's colder. I think it's down to poor circulation, in the winter I have a blanket tucked in over them and sometimes a hot bag that's warm.

    Hope that you get them warmer.

    Love Terry
    TB once said that "The forum is still the best source for friendship and information."

    It will only remain so if new people post and keep us updated on things that work or don't work and tips.

    Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

    Comment


      #3
      Hi Maz,

      Yes, my feet are like blocks of ice, except when I am in bed. Having had very hot feet for about the last 35 years, it's still a novelty to have cold feet.
      Dina

      Trying to keep positive, but not always managing.

      Comment


        #4
        Hi Maz

        Yes, it’s a perennial problem.

        As the nerves die and the muscles waste, there is no muscle tone to keep the circulation going normally.

        Early on, a couple of winters ago, I developed a pain in some toes. Couldn’t understand it, thought I’d bruised them. Turned out to be chilblains! Quite annoying and painful. Do be careful.

        Even in the summer, I now resort to lined shoes, thick or thermal socks – in bed if necessary, hot water bottles and a fan heater under the desk when working.

        …….or you could have a handsome young man kneel at your feet and massage them. (Thought for the day, ladies!)

        Happy landings on July 11th by the way, have dropped a few pennies in your tin.

        Take care

        Doug

        Comment


          #5
          Ooh, I'm liking your thought for the day, Doug! Are you offering? Ha ha ha.
          Dina

          Trying to keep positive, but not always managing.

          Comment


            #6
            Great thought for the day Doug. Bring it on. Lynne
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
            I'm staying positive and taking each day as it comes.

            Comment


              #7
              ' fraid not Dina.

              I did say young and handsome, so that's me excluded. Though I am still quite good at some things kneeling down ..... like weeding.

              Hugs

              Doug

              Comment


                #8
                Thanks Lynne.

                Keep smiling!

                Doug

                Comment


                  #9
                  Originally posted by Doug Carpenter View Post
                  ' fraid not Dina.

                  I did say young and handsome, so that's me excluded. Though I am still quite good at some things kneeling down ..... like weeding.

                  Hugs

                  Doug
                  Ha ha ha. Oh, what a disappointment! Just when I thought my luck was in!
                  Dina

                  Trying to keep positive, but not always managing.

                  Comment


                    #10
                    Thanks for the donation very much appreciated.
                    I have bbc Cambridge coming to my home tomorrow they want to record me about the jump its a bit nerve racking but I'm sure I will cope, hardest thing for me is being recorded sat in this god damn wheelchair.
                    Foot massage sounds idyllic fingers crossed I will get one.
                    Enjoy rest of your day
                    Maz

                    Comment


                      #11
                      Ooh Maz, stardom and fame If you don't want to sit in your wheelchair, can you sit in an armchair?

                      Re icy lower limbs - even in summer my knees, lower legs and feet are icy to the touch! It's very common for us

                      Love Ellie.
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

                      Comment


                        #12
                        Hi Ellie
                        I have a riser recliner chair I suppose I could sit in that, its so hard when this time last year I was racing the grandkids doing head over hills.
                        they are so purple & icy cold just another thing to get used to
                        Love Maz

                        Comment


                          #13
                          I know Maz, there are no words to describe how we feel about our failing bodies. It takes every bit of our strength and resilience to cope with this disease.

                          You're the same person inside, that important part of you hasn't changed. Your grandchildren love you just as much.

                          Big hug to you.

                          Love Ellie.
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

                          Comment


                            #14
                            Originally posted by maz View Post
                            Hi Ellie
                            I have a riser recliner chair I suppose I could sit in that, its so hard when this time last year I was racing the grandkids doing head over hills.
                            they are so purple & icy cold just another thing to get used to
                            Love Maz
                            Hi Maz,
                            It's so hard when your body keeps changing, but not for the better. I wish there was something amazing that I could say or do to help you cope with what's happening.
                            MND stinks, doesn't it?
                            Dina

                            Trying to keep positive, but not always managing.

                            Comment


                              #15
                              Hi Maz,

                              Good luck for tomorrow.. I am sure you will be a star and a huge well done for doing the jump.

                              I think we all try to stay positive and upbeat, amazingly so sometimes but each progression really hits us hard. It's difficult not to look back at how we were and I often think I should have appreciated being active but in reality who does ?

                              My feet are always freezing and weirdly sensitive so I might not have appreciated Doug's thought for today. (although no objection to the handsome man !) A hand massage would be a different story.

                              All the best for tomorrow,
                              Love Debbie x

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