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    When do they do blood gas test?
    does oxygen levels have to be low before it’s done

    #2
    My late Husbands MND nurse used to come to the house and take the blood from his ear. Or he had it done at Preston hospital on his routine appt

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      #3
      Firstly you would have a lung function test at the hospital. Are you due to have one?
      Diagnosed May 2021 bulbar onset als.

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        #4
        Originally posted by shrew View Post
        My late Husbands MND nurse used to come to the house and take the blood from his ear. Or he had it done at Preston hospital on his routine appt
        Had lung function test fortnight ago but haven’t heard anything yet

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          #5
          my experience was that i did a full lung function test every 3 to 4 months. also the respiratory team sent me an overnight oximetry monitor. then after a year they did ear gas test. maybe when you have our appointment re your results you could speak to them re your concerns.
          Diagnosed May 2021 bulbar onset als.

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            #6
            My dad's consultant refused to send him to the NIV/sleep clinic as he wasn't having headaches when he woke up. His breathing was declining and the physio had to write to the consultant to get the referral.

            They tested his blood gases and said his bicarbonate levels were raised. He did an overnight monitor in June but looks like his appointment to find out the results is not til mid September.

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              #7
              Originally posted by Claireflo View Post
              They tested his blood gases and said his bicarbonate levels were raised.
              If your dad didn't have the misfortune to be under the 'care' of that consultant, he'd most likely have been offered NIV by now... 😟
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                #8
                My husband has been routinely tested every 3 - 4 months since diagnosis. Full lung function initially and regular routine overnight oximetry which we send back through post and we get a letter a couple of weeks later telling us the results. He then gets blood gases test ( via earlobe) at each visit and we get results immediately.

                He still has no breathing problems but still regularly tested. We know the symptoms to look out for and can have an emergency appointment if symptoms start.

                We have had more contact with respiratory consultant than neurologist.
                Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicates with eye gaze.

                Respiratory and blood gases still within normal range.

                No speech but sense of humour still fully intact.

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                  #9
                  Originally posted by MMG View Post
                  My husband has been routinely tested every 3 - 4 months since diagnosis. Full lung function initially and regular routine overnight oximetry which we send back through post and we get a letter a couple of weeks later telling us the results. He then gets blood gases test ( via earlobe) at each visit and we get results immediately.

                  He still has no breathing problems but still regularly tested. We know the symptoms to look out for and can have an emergency appointment if symptoms start.

                  We have had more contact with respiratory consultant than neurologist.
                  What is ear gas test? I thought they took it from a artery in the arm when I was googling

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                    #10
                    Jojo1962 thats the trouble with Google. They take the blood from the ear.

                    Diagnosed May 2021 bulbar onset als.

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                      #11
                      MMG that's great that your husband gets such regular testing. It must be really reassuring to know it's being monitored and that he doesn't have any issues so far.

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                        #12
                        They take some blood from a prick on your earlobe, after warming it up with a bag of hot water you hold against your ear for a few minutes to increase your blood flow. Bit like a staple gun I always think! No big deal x
                        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                          #13
                          Originally posted by Ellie View Post

                          If your dad didn't have the misfortune to be under the 'care' of that consultant, he'd most likely have been offered NIV by now... 😟
                          Indeed! The NIV clinic didn't seem to agree with her "we treat symptoms not numbers" approach as the blood gases clearly showed his breathing is declining. They indicated they would likely recommend NIV, depending on the overnight monitor results.

                          September seems quite a way off but equally he's managing for now other than the continual issue of mucus (not sure how easy it will be to use NIV with the mucus issue) so hoping he can enjoy the summer and deal with NIV in September.

                          Whilst he's less active now he's still pottering around the garden, managed to have a little fire in the garden burning some rubbish during the heat wave which turned into a big fire with 5 fire engines to put it out! Thankfully only an area of the garden got burnt!
                          ​​​​

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                            #14
                            Originally posted by Heather R View Post
                            They take some blood from a prick on your earlobe, after warming it up with a bag of hot water you hold against your ear for a few minutes to increase your blood flow. Bit like a staple gun I always think! No big deal x
                            Our hospital (Stoke) use a little squirt of deep heat spray to warm the ear.
                            Carer for husband diagnosed with ALS April 2021. Hand onset. PEG fed, completely immobile, communicates with eye gaze.

                            Respiratory and blood gases still within normal range.

                            No speech but sense of humour still fully intact.

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                              #15
                              Last edited by Jojo1962; 27 July 2022, 02:36.

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