Announcement

Collapse
No announcement yet.

Getting comfy

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Getting comfy

    Any advice to get comfy when sitting and lying for long periods of time ? Struggling to sleep because I feel pressure on coccyx.

    #2
    ann I was given a repose mattress topper which has helped me with pressure pain at night. But others might have different suggestions xx
    Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

    Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

    Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

    Comment


      #3
      Hi Ann. Not sure if you are mobile at all.
      Do you have a pressure chair. These can be applied for through you O T. Grants are available for special pressure relief raiser/recliner chairs via MNDA.
      Profiling beds can be issued via O T with special mattresses for pressure relief.
      Not sure if you have any of these. It was also advised if mobility is ok to try to get up at least every two hours to relieve any pressure.

      Hope you find some relief😊xx

      Comment


        #4
        Originally posted by ann View Post
        Any advice to get comfy when sitting and lying for long periods of time ? Struggling to sleep because I feel pressure on coccyx.
        Sitting: an air or gel cushion probably - ask your OT.

        Sleeping: if you're feeling pressure, you're high risk of developing a pressure sore which you definitely do not want. A decent alternating air mattress is what to aim for - see what your community nurse or OT can offer you. xx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        Comment


          #5
          Thanks for suggestions I can move a bit very slowly 😂 waiting for hospital bed hopefully here soon. Doesn’t help not being able to turn over. I will speak to OT. 😁

          Comment


            #6
            Originally posted by ann View Post
            Thanks for suggestions I can move a bit very slowly 😂 waiting for hospital bed hopefully here soon. Doesn’t help not being able to turn over. I will speak to OT. 😁
            My Ann found something like this very useful to help her move in bed for a while. Should be readily available from your OT

            https://www.millercare.co.uk/bed-lev...CABEgJ3r_D_BwE

            Comment


              #7
              ann I have difficulty turning over in bed too. I have a hospital profiling bed and pressure relieving mattress, a bed lever similar to the one shown by Bowler and a Wendylett base sheet which is shinny, so makes turning over easier.

              All were provided free (long-term loan) by social services, via my OT.

              Hope you don't have to wait to long 🤞
              Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder function. Trying to be positive 😺.

              Comment


                #8
                Thanks for all the replies, bed on order also purchased a blow up cushion yesterday (good old Amazon) which has helped.

                Comment


                  #9
                  Originally posted by ann View Post
                  ... bed on order ...
                  Hopefully you're not buying the bed, Ann 😬 what about a mattress? xx
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  Comment

                  Working...
                  X