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    #16
    I also have the problem with phlegm at the back of my throat. I usually have a cup of hot water with honey and lemon, first thing. I had it before I had my NIV machine. I will try pineapple juice. Morning or the night before ?

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      #17
      Originally posted by LesleyB View Post
      I will try pineapple juice. Morning or the night before ?
      The night before, Lesley - 200ml of good quality pineapple juice before getting into bed - it's the bromelain (enzyme) in the juice which is the active ingredient.

      Do you use a humidifier with your NIV? It can also help if your mouth or throat is nice and moist and your head and neck are in a good position for swallowing. xx
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
      .

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        #18
        Yes, I do use the humidifier. I have been using the NIV about eight weeks. Just on a low setting. Over the last few weeks, I have got into a routine of being able to sleep through to morning. Or waking about two then until after eight.,Which is bizarre because before, I had woken up in the night for a trip to the loo, for years and years. Of course that’s ok when your fit and mobile. So a big help to hubby . So hope 200ml of juice won’t through it all out. But will give it a go. Thanks

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          #19
          Originally posted by TinyLady View Post
          I was told by the MND nurse yesterday to drink pineapple juice for mine. Not tried it yet though
          I’m on holiday at mo and drinking a lot of pineapple juice so this must work as I haven’t had a choking / phlegm incident since being here. My gp suggested fizzy drinks help too
          Diagnosed 17/2/22
          summer 2020 - Left arm onset
          Jan 2022 - breathing now affected

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            #20
            hi kk7did u find something that works asim fed up with swallowing it once its up

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              #21
              Originally posted by House44 View Post
              hi kk7did u find something that works asim fed up with swallowing it once its up
              Have you tried using a suction machine Wayne? It's like a mini hoover for your mouth. xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
              .

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                #22
                ill have a go thanks again

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                  #23
                  Rightly or wrongly I have been having Pina Colada juice (without the alcohol) …. it tastes good and like I’m on holiday 🏖

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                    #24
                    Originally posted by Madge View Post
                    Rightly or wrongly I have been having Pina Colada juice (without the alcohol) ….
                    There is absolutely nothng wrongly in having something tasty and enjoyable, there has to be some perks to living with a terminal disease, doesn't there 😏

                    As for the virgin Pina Colada, it will almost certainly contain pineapple juice, so it's a win-win for you Madge. xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                    .

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                      #25
                      All I need next is white sand and blue seas gently lapping at my feet with some Caribbean music playing and the sun starting to set 😜 happy days x

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