hi all. Does anyone else sleep in a chair ? my reasons why are i just don't like being stuck lying down as clostraphobia sets in. Sorry about spelling lol. i also have breathing issues not related to mnd. Do you wear neck brace to sleep in chair as my head drops forward and can't lift i back up. it's quite scary.
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I’ve slept in my chair for at least 6 months! I couldn’t move myself in the bed so the chair helps me go up and down much more easily. It does help with breathing too. My ot had to accept my reasons and at least I get a decent nights sleep. I have a supportive pillow round my head and my head is pushed into it and so I don’t have a problem with dropping head. If you sleep well in your chair, stick to your guns as only you know what’s best for you. Good luck. X
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Originally posted by House44 View PostDo you wear neck brace to sleep in chair as my head drops forward
Just wondering if NIV might improve how you feel regarding your breathing?? xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I think I’ve spent two nights in the hospital bed since the beginning of May. I can’t turn myself and can not get comfortable. Sleeping in the recliner also saves a transfer late in the evening when my husband is tired.
ann I hope the hospital bed works for you. Even though the bed rises, I can’t get enough leverage to shift myself into a comfortable position. I have more control positioning myself in the recliner.Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.
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Originally posted by Sarahw View PostI’ve slept in my chair for at least 6 months! I couldn’t move myself in the bed so the chair helps me go up and down much more easily. It does help with breathing too. My ot had to accept my reasons and at least I get a decent nights sleep. I have a supportive pillow round my head and my head is pushed into it and so I don’t have a problem with dropping head. If you sleep well in your chair, stick to your guns as only you know what’s best for you. Good luck. X
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Hello House44. My mum used both of these and found they helped support her head and neck - https://www.amazon.co.uk/BCOZZY-Supp...2&sr=8-15&th=1 and https://www.amazon.co.uk/gp/product/...?ie=UTF8&psc=1
Hope that helps x
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