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Rib spasms and sp02 85

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    Rib spasms and sp02 85

    My husband called my specialists Secetary severely concerned about me yesterday. They are trying to get me an expedited appt.
    I’m getting rib spasms to the degree when they happen, I can’t breathe. Have to wait 💔😭 I’m sweating profusely night and day even with aircon in my room.
    I have an sp02 that keeps going to 85 when my rib spasms happen. I’m so badly suffering now and I have been told I have to wait for specialist appt even by my GP 😭
    Suffering waiting. I’m so depressed it’s unbelievable.
    I really don’t know how much more I can take.
    Attached Files

    #2
    Becca how very scary for you. I'm not well clued up on what you are experiencing. But yes the low sp02 is low. Are you on baclofen? Wonder if the spasms would do with an increase of baclofen. Can you get your gp to talk with your neurologist?x
    Diagnosed May 2021 bulbar onset als.

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      #3
      And would you believe I’m still not diagnosed, my EMG stated motor axonal loss but still no firm diagnosis and now I’m struggling to breathe with the spasms. Waiting and suffering. I have more dints in my body than my mothers car. I’m on gabapentin, my neuro muscular specialist took me off baclofen in April as it causes muscle weakness as a side effect. Why on earth did the other neuro put me on baclofen if I was imagining it all. Begs belief doesn’t it!
      now I can’t breathe well when these spasms, sweating and wet through even though I have aircon unit in my room. Wake up with really bad headaches.
      Last edited by Becca; 3 August 2022, 15:51.

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        #4
        Have they ruled out MS ?
        Diagnosed May 2021 bulbar onset als.

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          #5
          AB91EBBB-CB2C-446C-976F-292996B6C4F4.jpg 8460A46A-4024-4285-9547-E096BB7DD2A6.jpg

          Yes everything but this. Here’s a pic of my tongue when my symptoms started and now.
          noted atrophy by specialist

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            #6
            MS, MG, autoimmune and everything else ruled out. Had eeg, mri and seps that ruled MS out.

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              #7
              Yes those tests would. I have bulbar onset als and I have no atrophy to my tongue. It just doesn't work at full strength. Pretty soon I won't be able to move it at all. I've had symptoms for 3 years. I would home in on your stress levels and chase your low spot. Good luck
              Diagnosed May 2021 bulbar onset als.

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                #8
                If you're having breathing difficulties - this could be caused by a range of things - and it's important not to try to diagnose the problem yourself.

                Please follow the NHS advice for breathing difficulties...

                https://www.nhs.uk/conditions/shortness-of-breath/

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                  #9
                  My EMG was abnormal too. 7 out of 14 muscles tested were abnormal including denervation.

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                    #10
                    Originally posted by fjay View Post
                    If you're having breathing difficulties - this could be caused by a range of things - and it's important not to try to diagnose the problem yourself.

                    Please follow the NHS advice for breathing difficulties...

                    https://www.nhs.uk/conditions/shortness-of-breath/

                    Yes, it’s my diaphragm spasming according to my doctor.

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