Here I go , I am so angry , I have not seen my consultant for a year , and got a letter saying my next appointment is by Skype. I am not on any medication , offered Rizoloul , what a waste of time, all it does is gives you another couple weeks of suffering and the runs. In reality between all the continous trials and tests out there , There is nothing for MND.
I see Billions going into MND research and trials, I think its pathetic grant after grant to individuals and groups who have never produced or discovered not as much as an Asprin . Any drugs out there like Rizoloul are secondary drugs for treatment of cancer.Yes I agree we must continue to seek a cure. but really , Zilch from all those specialist centres all those medical professionals whos careers has been paid from Mnd grants.
I went to the Meet the experts at the annual MND event in Glasgow, next ones is in Australia. anyway Ive never seen so much back slapping egos in my life, and were actually giving each other awards, for what I dont know.
The bottom line is what the hell are they doing for Mnd sufferers , the answer is nothing, end off.
Alexander Fleming must be not rolling but spinning in his grave. Anyway back to the meet the experts in Glasgow, It was an eye opener , surrounded by people who are aloof to reality. the one or two Mnd sufferers there , who were looking to ask questions , more or less ignored.
In my opinion MND sufferers are at the mercy of this gravy train , who are really secondary to the career paths of others.
This is my opinion , you are welcome to disagree, but again nothing since Mnd charities have been pouring or flooding cash into some kind of hope. Anyone got a Aspirin.
I see Billions going into MND research and trials, I think its pathetic grant after grant to individuals and groups who have never produced or discovered not as much as an Asprin . Any drugs out there like Rizoloul are secondary drugs for treatment of cancer.Yes I agree we must continue to seek a cure. but really , Zilch from all those specialist centres all those medical professionals whos careers has been paid from Mnd grants.
I went to the Meet the experts at the annual MND event in Glasgow, next ones is in Australia. anyway Ive never seen so much back slapping egos in my life, and were actually giving each other awards, for what I dont know.
The bottom line is what the hell are they doing for Mnd sufferers , the answer is nothing, end off.
Alexander Fleming must be not rolling but spinning in his grave. Anyway back to the meet the experts in Glasgow, It was an eye opener , surrounded by people who are aloof to reality. the one or two Mnd sufferers there , who were looking to ask questions , more or less ignored.
In my opinion MND sufferers are at the mercy of this gravy train , who are really secondary to the career paths of others.
This is my opinion , you are welcome to disagree, but again nothing since Mnd charities have been pouring or flooding cash into some kind of hope. Anyone got a Aspirin.
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