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    Never a dull moment…

    Woke up last night, with excruciating bowel pain. Went to the toilet, and proceeded to fall unconscious and smack my forehead on the lip of the shower. Came to very slowly and totally out of it. My hubby heard the “thump” when I fell and came to help. Then proceeded to have painful diarrhea. Went back to bed and woke up this am with bloody mucus diarrhoea. Just went to GP and he thinks I might have C. difficile…? Or viral hepatitis…? Now waiting for blood work and stool sample tests to take home. Strict instructions to call 911 if I pass out again.
    Ugh 😩 I am SO tired!!?! Just got over COVID and now this. My MND symptoms are worsening by the day. I just want to curl up in a ball and wake up from this nightmare!


    #2
    Sorry to read this - a few folk pass out on the toilet for various reasons.
    I have Crohn's Disease, which adds a few challenges, but have transcended any 'dignity concerns' to the point where (by my own consent and a decent Gastroenterologist), routine colonoscopies every few years have additional medical staff in the procedure room for their training and it looks like an alien abduction film 'probing' scenario (first time checks are far more considerately and sensitively and gently managed).

    Never put off or worry too much about having things like this assessed, early intervention is practical, reassuring and well worth getting checked.

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      #3
      Oh AngieCanuck that sounds awful. How worrying for you and your husband. I hope you get it sorted. Sending very gentle hugs xx
      Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

      Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

      Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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        #4
        Oh what a night/day, I hope they get the test results quickly and sort out some medication so you're feeling better soon. You must be exhausted, hope you get a good night's sleep x

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          #5
          AngieCanuck Oh, you poor chick Angie.

          Sending you 😘😘 & 🤗🤗

          Love Ellie.
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Angie you poor little soul. Bad enough what you have without getting anything else.

            Sending love and hugs.
            ♥️🤗😘🤗
            when i can think of something profound i will update this.

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              #7
              AngieCanuck I hope today will be a little better. Were you checked for a concussion for bumping your head? Soft gentle hugs that you start feeling less overwhelmed by all of this. 🤗🤗🤗
              Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.

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                #8
                AngieCanuck I'm so hoping they sort you soon. Big huge hugs xxxx
                Diagnosed May 2021 bulbar onset als.

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                  #9
                  Oh Angie that sounds like hell, so sorry. Do hope you will feel a lot better today. Sending love and gentle hugs x
                  Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                    #10
                    Get well soon Angie 😘
                    Foxes Never Quit 💙

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                      #11
                      Hope you feel better soon Angie 🤗🤗
                      Diagnosed 3rd November 2021 Bulbar Onset

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                        #12
                        Hope you're feeling better today AngieCanuck. It sounds awful.

                        Gentle hugs x🤗❤😘

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                          #13
                          AngieCanuck you poor soul that just makes me shudder the thought of you hitting your head x I hope you get better soon and get the right medication x take care x

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                            #14
                            Hope you feel better soon, how awful and scary for you 🥰🥰

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                              #15
                              Yes same I hope u r feeling much better soon as possible xx

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