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Huge thank you

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    Huge thank you

    I just wanted to thank people on this forum. 2 weeks ago I was loosing the will to do anything.

    things you lovely lot have given me:

    Emotional support. This encouraged me to take care of myself. I spoke with g.p and he had received a letter from my neurologist who suspected emotional liability. So I've started citalopram.

    dehydration advice- Its made a massive difference as i now do not have the thick mucus issue.

    Revitive. Was hesitant re the Β£330 price tag but its basically 2 weeks pip money.
    I've used it for 4 days and its amazing re reducing my badly swollen feet.

    I pick my powerchair up today. I'm embracing the freedom & comfort it will give me.

    I had stopped eating and was simply not taking care of myself. I have been let down re some of the departments involved in my care but, I'm letting go of that negativity. It just drags me down.

    Without the forum I would have slipped into a dark place. Now I feel the sun is shining.
    Diagnosed May 2021 bulbar onset als.

    Well that's really good news. Like taking your socks off because the sun is out.

    Group hug I think.
    when i can think of something profound i will update this.


      shelly21 so pleased your feeling brighter in mood, I’m going to get my husbands revitive out, his feet are a bit swollen so thanks for the nudge xx


        shelly21 thanks for posting this and so pleased to read you are feeling the sunshine 🌞

        This condition is an emotional rollercoaster and it's lifted me reading this today. I'll join in that group hug with denise πŸ€—πŸ€—πŸŒžπŸŒž
        Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.


          shelly21 This horrible illness takes so much, but it can't take the inner you, and clearly chooses the most courageous, and that is what you are xx


            Awe shelly21 I’m so pleased you are feeling like a warrior again. Joining in on the group hug πŸ€— β˜ΊοΈπŸ€—πŸ€—


              That’s so good to hear shelly21 , and hugs for all us warriors x
              Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!


                shelly21 Aww Shells, your post made me weep happy tears and sad tears this morning - I had to come back to it as I can't type with tears πŸ₯΄

                Wonderful uplifting news.

                Expect to feel the full benefit of the Citalopram in weeks, rather than days πŸ€—πŸ€—πŸ€—πŸ€—πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user


                  Group hug! πŸ€—πŸ€—πŸ€—πŸ₯°

                  So pleased to hear that the sun is shining for you again. 🌞
                  Diagnosed December 2020 with lower limb onset ALS, now involving hands and arms.


                    So pleased to read such a positive post. You go girl!!! Xx


                      Shelley so pleased you are feeling brighter again.
                      Sending love.light and smiles not to mention hugs
                      Diagnosed 3rd November 2021 Bulbar Onset


                        How lovely to see such a positive post with lots of improvements πŸ˜€. It is a real roller-coaster but great that you are in a better place and taking care of yourself.

                        You are always supporting others and its great to see everyone rally round to offer advice, suggestions or just listen and sympathise when times are hard and celebrate the good times! Let's hope the sun shines on and on 🌞🌞🌞 x


                          Aw shelly21. I'm so glad there is sunshine for you. Thank you so much for taking the time to post about some recent improvements. It brightened my day.

                          I hope your powerchair gives you more independence and freedom.

                          Love and hugs πŸ˜˜πŸ€—β€xx


                            I’m really pleased shelly21 that you are out of the dark and in the sunshine. The sunshine always makes you feel happier.
                            big hugs πŸ€—


                            • Here's to Shelly...

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                              Love and hugs xxxx
                              Last edited by Graham; 19 August 2022, 22:53.