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    #1

    Elected as trustee

    Good afternoon to you all

    I am not sure how far the news has travelled, but I just wanted to say thank you very much for all of you that voted for me in relation to becoming a trustee of the MND Association.

    And this thanks is because I was selected and elected and have now attended the trustee induction that I am required to do is a new trustee.

    I will try and remain as active in the South London branch as I can and will remain the campaigns contact there.

    Warmly
    Warmly


    Andy

    ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

    "Things turn out the best for people who make the best of the way things turn out"
    Tags: None
    #2
    Smashing Andy. Lynne
    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

    I'm staying positive and taking each day as it comes.

    Comment

      #3
      Congratulations Andy!

      Doug
      Diagnosed April 2017

      Comment

        #4
        Good to hear we have a representative up there, Doug;

        Well done.

        Love Terry
        TB once said that "The forum is still the best source for friendship and information."

        It will only remain so if new people post and keep us updated on things that work or don't work and tips.

        Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

        Comment

          #5
          That's great news Andy - many congratulations!

          I was wondering if you had been voted in and I couldn't find any election results on the Mnda's website - but I expect the webpage displaying details and photos of current Trustees will be updated in due course.

          Best wishes
          Kayleigh x

          Comment

            #6
            Many congratulations, Andy.
            Dina

            Trying to keep positive, but not always managing.

            Comment

              #7
              Great news Andy, I’m sure quite a few of us on this forum voted for you.

              Andy
              Sporadic MND/ALS - Limb onset - Diagnosed May 2016
              night time NIPPY, cough assist, PEG

              Today is the tomorrow I feared yesterday

              Comment

                #8
                Congrats Andy and well deserved!!

                Love Ellie.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
                ​

                Comment

                  #9
                  Huge congratulations Andy,

                  Well done,
                  Love Debbie x

                  Comment

                    #10
                    Well done Andy and congratulations. I’m sorry we didn’t meet up at the conference since I had to cancel due to me falling. I was hoping that MNDA might have posted a link to the speeches, especially from professor Chris Shaw.

                    Best wishes,
                    Barry
                    I’m going to do this even if it kills me!

                    Comment

                      #11
                      Congratulations Andy well done.

                      Comment

                        #12
                        Good morning Barry

                        Thank you for your congratulations.

                        Originally posted by Barry52 View Post
                        I’m sorry we didn’t meet up at the conference since I had to cancel due to me falling
                        I was looking for you and wondered if something like that stop you attending - I hope we can meet at some other time.

                        Prof Shaw gave a very positive presentation and I believe it should be on the MDNA website soon.

                        The interesting part was focusing on the cellular nature of the disease and what he now knows about it

                        I hope your bruises are fading?

                        Warmly
                        Warmly


                        Andy

                        ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

                        "Things turn out the best for people who make the best of the way things turn out"

                        Comment

                          #13
                          Good morning all

                          Thank you for your congratulations - I hope I can do some good in this role

                          Warmly
                          Warmly


                          Andy

                          ​Diagnosed 03/2015. One sided limb onset (arm) sporadic PMA/MND - now 90% left arm and 90% right arm, plus other bits including both shoulders and also some breathing issues – Campaign contact Winchester and Southampton branch, and trustee of the Association

                          "Things turn out the best for people who make the best of the way things turn out"

                          Comment

                            #14
                            Andy

                            Congratulations once again on your election. I'm sure you'll do a lot of good in the role.

                            It may be too early to say, but are there any particular issues in the MNDA at trustee level that you're aware of?

                            Doug
                            Diagnosed April 2017

                            Comment

                              #15
                              Congratulations Andy.

                              Sue

                              Comment

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