Maybe a silly question but I’m finding it really difficult to brush my teeth. Arms/hands are fairly rubbish but it’s the breathing that’s causing the problem. I get totally out of breath! Anybody got any solutions? X
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My PAs clean my teeth now and have done so for about the last two years. Before that when I was struggling I was able to make a fist and hold the toothbrush upright on the arm of my power chair and take my teeth to the brush (if that makes any sense at all). This only works with an electric toothbrush though 👍Foxes Never Quit 💙
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Screenshot_20221005-120319.pngI use a length of pipe lagging pushed onto the toothbrush handle, this makes it easier to grip.
I have to use two hands, one supports the other.
Sometimes I sit at the kitchen table with a bottle of water and a cup to spit in, resting my elbows on the table. I take my face to the brush similar to JamesW describes. For cleaning front teeth I tend to move my head (like shaking my head) rather than moving the brush.
Can't comment on breathing issues when cleaning teeth.Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.
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Thought I'd stumbled across an NSFW thread here 😉😉
Like others, I brought my mouth to the electric toothbrush and moved my head rather than the toothbrush, but I've had somebody do the brushing for years now.
Maybe if you sat, used an electric brush (if not using one) and took frequent breaks, your breathing might not be so affected, and only use a scraping of toothpaste with little or no water. xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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I am also finding a standard brush awkward in hands particularly turning it to angle for upper teeth, but the electric brush is bit easier. I also seem to dribble the toothpaste a lot onto floor and edge of sink! xDiagnosed June 2022. Confirmed MND which is currently PLS. Limb onset.
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I use an electric brush so I can grip it ok. It's still an effort to control moving it about though and I get tired.
I also leave my mouth open and let the toothpaste/ saliva just dribble out and into the sink because I can't cope with it in my mouth.Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
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Originally posted by Hope View PostI am finding my jaw clamps down on the brush. I’m not sure why?
It can cause you to take chunks out of your cheeks and bite down hard on your tongue and, as if that's not bad enough, you need to wait until the muscle relaxes before freeing said tongue or cheek - ow! xx
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Originally posted by Ellie View Post
Ah, that will be your naughty upper motor neurons causing muscle spams making your jaws clench 🥴
It can cause you to take chunks out of your cheeks and bite down hard on your tongue and, as if that's not bad enough, you need to wait until the muscle relaxes before freeing said tongue or cheek - ow! xxBulbar onset diagnosed Nov 21. No speech but limbs ok so far.
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