My hands definitely get more clumsy in cold weather. I wear fingerless mitts to help with this.
Announcement
Collapse
No announcement yet.
A couple of issues
Collapse
X
-
The loss of muscle changes the circulation to extremities which is going to make one colder. Muscles play an important part in circulation so it is expected that we are going to be more sensitive to the cold. I used to live with a fan blowing on me, but now it makes me so cold. Things are changing...
Comment
-
Madge I’m thinking of you and hoping that you have sunshine moments today. This disease sucks, with its continual loss. Trouble is, we adjust to the loss and then things “progress” and we have to start all over again.
Do you have a nice electric blanket? I find my heating pad is a life saver when my muscles are cramping up.
Comment
-
Madge I've had a repose topper for a while. It was actually a great help at first, but now is not effective enough and I am starting to get pressure issues. Maybe the topper will work for a bit, but like others have said, this really needs sorting and I hate that you are sore, uncomfortable and feeling sad.
Interested to hear how you get on with the neater eater xxDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!
Comment
-
Madge troubles never seem to come singly do they? Thrush just is the icing on the cake when you are run down, I have had it twice, and feeling helpless is so upsetting I find. Hope you are finding solutions to make you more comfortable and supported xxxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
Comment
Comment