hi all last night i had peg feed then about half hour later I felt all funny then from my feet i felt a heat rush up to my head and passed out and woke soaking from sweat. anybody experience anything similar ? thanks
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I find I am suddenly getting sudden heatrush up to my head sometimes now, and struggled to quickly take off a layer of clothing , but have never fainted. It has reminded me of menopausal times long past! XDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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Patw Re the hiccups: they could be because you're swallowing more air, maybe it's reflux (any burning?) or because your swallow reflexes aren't behaving as normal.
Any likely contenders? Do you often cough/aspirate? xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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