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Amazing Day Great Physio and OT

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    Amazing Day Great Physio and OT

    Well what an amazing day.
    The Physio came with and OT today. First, what lovely people they were.
    They found the things that I would not have thought of.
    • So they are going to raise my sofa by 4 inches to make it easier to get on and off.
    • Frames around the toilets
    • Even unwound the lights that had been left from Christmas that went around the hand rail going up the stairs
    • Next things I have to see if the landlord will let me
    • They want to put another rail up the stairs as they say its good to try and keep the legs moving a bit
    • Fold down seat to go on the wall in the shower (I use a stool thing at present)
    • Rails for the shower wall etc (again have to ask landlord for permission)
    • Then showed some nice simple exercises that might help with the leg pain
    • Suggested a slow cooker so that can throw some sauce into it in the morning with something (I have nutritional suppliments anyway)
    What lovely people they were.

    #2
    Glad you had a positive day.
    Will they come back next week to put your Christmas lights back up again?
    Hi, I'm Eddie.
    Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
    Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
    Still wondering what the future will bring.

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      #3
      Originally posted by Christopher View Post
      So they are going to raise my sofa by 4 inches to make it easier to get on and off.
      You can also ask for a riser-recline armchair, now or in the future. If the OT won't supply one, the MNDA will, or will fund one.

      The armchairs are blooming brilliant πŸ‘πŸ‘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        #4
        Originally posted by Ellie View Post

        You can also ask for a riser-recline armchair, now or in the future. If the OT won't supply one, the MNDA will, or will fund one.

        The armchairs are blooming brilliant πŸ‘πŸ‘
        I wasn't expecting the OT to come today. He came with the Physio, she was the one organising it all, which was amazing. I think that another OT is also going to assess things in a week or so as well.
        The most nerve wracking bit will be broaching the subject of the bars and things with the landlord. I should be positive and hopefully they will think that it adds value for them in the future.

        The riser/recliner chair sounds wonderful. I have had the lovely sofa I sit on for twenty years, it still looks new. I have my spot in the corner, the cleaner apologises every time she plumps up the cushions as it changes the shape . Was so nice of the physio though to say, "you have a nice comfortable spot there, we are just going to make it a bit easier by raising the sofa by four inches"

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          #5
          Christopher- sounds like a lovely, helpful and positive visit. I remember my first visit and the OT laughing because everything is already high enough or too high for me. I found that out when I had my hip replaced. But it's great that such simple changes can make a really big difference.

          I second the rise recline chair. Got mine about a month ago and have lived in it ever since 🀣
          Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

          Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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            #6
            Originally posted by WheelsOfSteel View Post
            Glad you had a positive day.
            Will they come back next week to put your Christmas lights back up again?
            Maybe if I point them in the direction of the shed they will get the Christmas tree out and decorate that too ?

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              #7
              So glad your visits were positive Christopher. I find my OT, physio and nurse are a brilliant support and my first contact if I'm struggling.

              I really hope your landlord is on board with any changes... he/she really should be !

              I give another πŸ‘ to a good riser recliner . XxπŸ˜˜πŸ€—

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                #8
                That's great that you had a positive visit and I'm sure the changes will help. Good luck with the landlord.

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                  #9
                  Well that was really positive. It's nice to hear some cheerful things for a change.

                  😘
                  when i can think of something profound i will update this.

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                    #10
                    Hi Christopher,

                    I'd also recommend the riser recliner. The OT ordered both the feet to raise the sofa and a recliner. My mum wanted to keep using the sofa for as long as possible, so they didn't give us the recliner.

                    But when her mobility changed it was the district nurse who ordered a standard size one, when the OT originally ordered us a small one, my mum's only 4"6. We then had to wait a while for the small recliner to be available.

                    Although you may not have the space, but if you do, I'd recommend accepting all the equipment/aids that you may need, so it's ready for use.

                    I'm glad the visit went well 😊
                    Carer to mother diagnosed May 2021 with bulbar onset MND. No longer speaks, RIG fed, NIV 24 h, left side completely weak/no function, right leg now weak, limited use of right hand.

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                      #11
                      I would recommend the bio bidet too.
                      when i can think of something profound i will update this.

                      Comment


                        #12
                        Thank you Purpletunes that is really good advice about accepting things so that you are ready when you need them. I think for too long the big male ego can keep saying, no I don't need this. Acceptance of the situation actually starts to make your life easier as you learn that its ok not to feel guilty about having a relax.

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