Short But Sweet
I just wanted to say I only made two posts and one of those to just say Hi but thank you for the answers to my question and the time and explanations given. Sadly, in some ways but not in others, Iain my nephew passed away last night from complications of a covid infection he got in his care home so he is free from his body trying to be in charge and will be resting in peace.
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Chi Man Frank Heartfelt condolences to you, Frank, and to Iain's family and friends.
Thank you for taking the time to post.
Look after yourself.
Love Ellie xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Chi Man Frank oh dear. Sad news but then and end to this dreadful disease.
Sending love and hugs xxxwhen i can think of something profound i will update this.Comment
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Chi Man Frank sorry to hear about your nephew, at least he’s at peace now. How lovely of you to take the time to let us know. You must have been a great uncle to him. Take care xxComment
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So sorry to hear about your nephew, thinking of you and his friends and family.Comment
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Sorry Chi Man Frank to hear about your nephew, but glad you found some support here xDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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