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    Distress Alarms

    What are peoples experiences with distress alarms that hang around the neck for example.

    Yes I have one son who still lives with me, but he is out of the house for about 11:00 hours of the school day, and as he drives and has a great social life he is out a lot.

    Do people have alarms which call a person, or a centre or the emergency services?

    Many thankings for the advice it will give me and others.

    Big hugs

    #2
    My son bought Stephen an alarm that was just for in the house so I could be alerted if he fell or couldn't get up. Thing was if he fell could he reach it and it was his hands that mnd got to first. I think there is an alarm system, through the council possibly, and they will come out to you but I presume you would have to leave a key with them or they would need access. Perhaps you could have a webcam in the house so your son can check you out but if he's having a great time he might just forget to check up on you. 😘
    when i can think of something profound i will update this.

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      #3
      Ask your Council first - sometimes there is a monthly smallish fee for the service, and contact nominated people and/or the Emergency Services.

      Some smart watches have fall alerts, which can be enabled.

      If you're alone in the house, it's a good idea to have a secure key safe box. xx

      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #4
        Thank you Ellie the font of all knowledge. So I ask one question and get a bonus of three really great suggestions/tips.

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          #5
          Who doesn't love a Brucie Bonus? 😉
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Ellie Again you make all three of my personalities laugh (oops I wasn't meant to mention them).



            Well I dreamed since a child that I could lift out of this body and fly. So now is maybe the time to do it.

            Though in saying that today has been great fun discussing different options for selling my business. So instead of selling it all, I will keep a part so that it gives my brain some challenges

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              #7
              I have a key safe outside and a pendant to press which should be round my neck. The council provided it all for me last year.

              However I hate the thing round my neck and admitted I wouldn't press it if I fell anyway because I will just wait for someone to come (eventually!).

              These systems can be provided... but I am reluctant to use it (maybe if I cut myself badly or the cat was injured).
              Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.

              Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!

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                #8
                TinyLady I get the not wanting to wear it. Stephen just felt it made him different from everyone else. Why wouldn't you press the button? I know I hated dialling 999 I felt it might be a mistake, Stephen will suddenly get up from the floor or I'd be wasting someone's time. Its like not wanting to ask for help.

                I'm trying to type this with milly going round and round in circles on my lap trying to push my phone away. 🙄😸
                when i can think of something profound i will update this.

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                  #9
                  denise I used to have a cat that would pull at my fingers to give it a stroke

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                    #10
                    Christopher George bites my knees while sitting on my lap or runs behind me and grabs hold of my legs. Milly likes to jump on my lap and head butt my phone or face. The other day she head butted my cup burning my lip and did it a 2nd time splitting my lip. Chrissy has a milder manner just likes to sit on me in bed. She will bite my fingers if I trail them over the garden chair and demand attention. Funny how any spray can and they all vanish even if it isn't flea spray 🙂😸😺😾
                    when i can think of something profound i will update this.

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                      #11
                      denise I'm with TinyLady on preferring 7hrs on the floor to 'suffer the ignominy' of pushing that help button... (my sentiment, I'm not speaking for Tiny) xx
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                        #12
                        Ellie TinyLady I'd probably do the same. If I fell over outside when I used to wear the most stupid high heels it was more about hoping no one was looking. Thing is if I lived alone, like now, then what would I do? If I don't come on the forum for a while send lassie. 😳 or international rescue. 🚀
                        when i can think of something profound i will update this.

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                          #13
                          We would all know that something was very wrong if denise Ellie TinyLady were not on the forum for a while.

                          Have we now just created FAS (forum anxiety syndrome)?

                          Be safe all

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                            #14
                            I'm thinking we should all keep a laptop on the floor so we can at least communicate on the forum. Someone will find us one day. ☺️
                            when i can think of something profound i will update this.

                            Comment


                              #15
                              Christopher I have a button on an elastic round my wrist, which connects to a help service run by the local authority. It costs me about £23/month. Apparently I have pressed it several times without being aware of it. Someone answers on my landline then supposedly my mobile, and then my son if no reply. They are supposed to get to me within an hour if needed (hopefully a lot quicker!)
                              Trouble is it I haven’t got my iPad with me with speech app, the responder struggles to understand my speech. Not had need of them up to now, but feel safer having it as I live on my own. I have a key safe by the front door
                              Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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