Ventilation

[Terry]

Hi Dina,

Your speech therapist should be able to help you with talking things and apps, etc.

Love Terry

[Lynne K]

If you have an ipad Dina you can get a key to attach from Amazon. I got one for my ipad air2 and the ipad clips into so looks like a mini laptop. I used it for a couple of weeks but took it out of it. Now I use the touch screen. But if I want a keyboard sometime it's there waiting. Lynne

[Gillette]

Hi Lynne,

Thank you the information. I shall have to try to find it on Amazon.

Thanks, Terry,

I'm waiting for a gizmo from Assistive Technology, which I think is supposed to help. I shall also contact my community OT when I finally get home from hospital...

[Ellie]

Hi Dina,

If you are going to buy a keyboard for your iPad, the ones with raised keys/buttons, tend to be easier to use with weak fingers, rather than those with flat keys/buttons which often need a firm & definite press.

Hope the gizmo is useful.

Love Ellie.

[Gillette]

Hi Dina,

If you are going to buy a keyboard for your iPad, the ones with raised keys/buttons, tend to be easier to use with weak fingers, rather than those with flat keys/buttons which often need a firm & definite press.

Hope the gizmo is useful.

Love Ellie.

Thanks, Ellie. That really useful to know.

[Gillette]

Good(ish) news

Sort of good news yesterday. After a sudden, marked but sustained deterioration, the doctors and palliative care nurses are putting a plan into place which, it is hoped, will alleviate symptoms. We also have a plan for the following step. I feel happier and more settled, particularly as we are still working towards my discharge home.

[Ellie]

It's always good to have a plan of action Dina - it takes a lot of fear out of the equation and gives you head space to focus on other aspects of life.

Sounds like you're in good hands with a knowlegable and caring team.

Big hug to you.

Love Ellie.

[Gillette]

It's always good to have a plan of action Dina - it takes a lot of fear out of the equation and gives you head space to focus on other aspects of life.

Sounds like you're in good hands with a knowlegable and caring team.

Big hug to you.

Love Ellie.

I certainly am, Ellie. I can't overstate how amazing they have been - I've probably bored everyone silly, going on about it - sorry! Not only that but communication between here, MND clinic and community team is excellent. I feel very fortunate - even though I have this horrid disease.

[Terry]

I've probably bored everyone silly, going on about it - sorry!

You never bore us Dina;

Love Terry