Another update 😊

[Marc from London]

Hi Guys

been offline for a while as I spent October in the Philippines. But I had to return early because I was accepted to participate in the wave study WVE-004-001 and I had my day one yesterday. Throughout the day my vitals have been measured and all the rest. In the afternoon I had my lumbar puncture with injection of med/placebo. So far so good. But one thing that now bothers me big time are the blood samples. In the past I never minded them but since yesterday they have become a kind of a nightmare for me. I had blood taken every hour.I just can’t see these needles anymore.🙁 But I need to pull myself together somehow.

anyone here made a similar experience ?

best wishes
marc

[Ellie]

Sorry your holiday was cut short but yabba dabba doo it was to haul your donkey back to London and start on that trial!!

I had blood taken every hour.I just can’t see these needles anymore.

What... no cannula, a needle every hour?? xx

[Marc from London]

Ellie yeah I had booked a flex ticket. In case i wasn’t accepted but but ole here I am. lol

yes there were cannulas but they clogged up all the time.

oh well have learned today I have 6 lumbar punctures. At 2 of these I get the med/placebo. 10mg. I will now monitor if I have any particular physical decline in the next couple of weeks. As this would mean I only received a placebo or 10mg is not sufficient or worse the drug doesn’t work.

Best wishes
marc

[Christopher]

Positive - being able to take flights.
Positive - being able to travel
Positive - having a month in the Philippines

I would just ask for a cake each time they take a sample.

[Heather R]

Marc from London very brave, 🤞 it helps x

[Arcadian]

Were the regular blood tests by individual drawn sample, or a fitted cannula?

(I've had SYNACTHEN tests for Addison's Disease a couple of times, but the regular timed blood samples were from a cannula, not individually drawn by needle).