Feeding tube

[pje16]

I was visited at home by a lovely dietician and also a speech therapist at the same time
this was about a month after I was diagnosed and at the time was already on soft or puréed food owing to chewing and swallowing problems
We spoke about tube feeding, I wasn't against it, but they did say the best thing to do was get it in case your symptoms worsen to the extent where they refuse to operate on you, that made my mind up, and I am now on a waiting list for a PEG

[Arcadian]

Thanks everybody for sharing thoughts and experiences around this.
It's an issue I'm struggling with if the time comes where a feeding tube is recommended.

I can get my head around accepting a colostomy / stoma for a long-term unrelated illness, because I'm aware of the advantages and potential quality of life advantages.

My uncertainties around a feeding tube relate to some pre-MND diagnosis diaphragm and stomach problems (Crohn's and hiatus-hernia), regarding the practicalities around that, together with the psychological impact.

I did see this useful decision aid link in Thumbprint Magazine though:-

https://www.gastrostomychoice.co.uk

[JamesW]

Thanks all, seems to be clearing up well now xx

[TinyLady]

JamesW I hope your unwanted visitor is soon evicted! Nothing more annoying when everything seems to be healing well x

[Claireflo]

Hope the antibiotics clear it up soon JamesW

[Ellie]

JamesW At least you were swabbed and are obvs taking the most appropriate meds.

Wishing you well 😘😘

[JamesW]

JamesW oh no! Wishing you a speedy recovery and your unwelcome visitor takes a hike😕xx

Thanks Piglet 😊😊😊

[Piglet]

JamesW oh no! Wishing you a speedy recovery and your unwelcome visitor takes a hike😕xx

[JamesW]

JamesW 😬 MRSA? 😘

Nothing that serious yet I hope but left untreated it can also cause sepsis 😳😳😳

Just a common post-op bacteria in exudate (30% occurrence apparently)…… if bits start dropping off me I will go back to the surgery 👍😅 xxx

[Ellie]

JamesW 😬 MRSA? 😘

[JamesW]

JamesW All healed nicely and tube behaving? xx

Everything is fine, but I did manage to get a nice little visitor in the wound by the name of staphylococcus. Just halfway through some antibiotics….trying to evict him as we speak 😅😅😅😘😘😘

[Ellie]

JamesW All healed nicely and tube behaving? xx

[JamesW]

Now you can go into a restaurant and order steak, chips, a blender and a funnel

🤣🤣🤣🤣🤣🤣🤣🤣

[WheelsOfSteel]

Now you can go into a restaurant and order steak, chips, a blender and a funnel

[JamesW]

Thanks everyone for your kind messages 🥰