I was visited at home by a lovely dietician and also a speech therapist at the same time
this was about a month after I was diagnosed and at the time was already on soft or puréed food owing to chewing and swallowing problems
We spoke about tube feeding, I wasn't against it, but they did say the best thing to do was get it in case your symptoms worsen to the extent where they refuse to operate on you, that made my mind up, and I am now on a waiting list for a PEG
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Thanks everybody for sharing thoughts and experiences around this.
It's an issue I'm struggling with if the time comes where a feeding tube is recommended.
I can get my head around accepting a colostomy / stoma for a long-term unrelated illness, because I'm aware of the advantages and potential quality of life advantages.
My uncertainties around a feeding tube relate to some pre-MND diagnosis diaphragm and stomach problems (Crohn's and hiatus-hernia), regarding the practicalities around that, together with the psychological impact.
I did see this useful decision aid link in Thumbprint Magazine though:-
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Now you can go into a restaurant and order steak, chips, a blender and a funnel
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