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  • pje16
    replied
    I was visited at home by a lovely dietician and also a speech therapist at the same time
    this was about a month after I was diagnosed and at the time was already on soft or puréed food owing to chewing and swallowing problems
    We spoke about tube feeding, I wasn't against it, but they did say the best thing to do was get it in case your symptoms worsen to the extent where they refuse to operate on you, that made my mind up, and I am now on a waiting list for a PEG

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  • Arcadian
    replied
    Thanks everybody for sharing thoughts and experiences around this.
    It's an issue I'm struggling with if the time comes where a feeding tube is recommended.

    I can get my head around accepting a colostomy / stoma for a long-term unrelated illness, because I'm aware of the advantages and potential quality of life advantages.

    My uncertainties around a feeding tube relate to some pre-MND diagnosis diaphragm and stomach problems (Crohn's and hiatus-hernia), regarding the practicalities around that, together with the psychological impact.

    I did see this useful decision aid link in Thumbprint Magazine though:-

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  • JamesW
    replied
    Thanks all, seems to be clearing up well now xx

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  • TinyLady
    replied
    JamesW I hope your unwanted visitor is soon evicted! Nothing more annoying when everything seems to be healing well x

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  • Claireflo
    replied
    Hope the antibiotics clear it up soon JamesW

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  • Ellie
    replied
    JamesW At least you were swabbed and are obvs taking the most appropriate meds.

    Wishing you well 😘😘

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  • JamesW
    replied
    Originally posted by Piglet View Post
    JamesW oh no! Wishing you a speedy recovery and your unwelcome visitor takes a hike😕xx
    Thanks Piglet 😊😊😊

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  • Piglet
    replied
    JamesW oh no! Wishing you a speedy recovery and your unwelcome visitor takes a hike😕xx

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  • JamesW
    replied
    Originally posted by Ellie View Post
    JamesW 😬 MRSA? 😘
    Nothing that serious yet I hope but left untreated it can also cause sepsis 😳😳😳

    Just a common post-op bacteria in exudate (30% occurrence apparently)…… if bits start dropping off me I will go back to the surgery 👍😅 xxx

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  • Ellie
    replied
    JamesW 😬 MRSA? 😘

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  • JamesW
    replied
    Originally posted by Ellie View Post
    JamesW All healed nicely and tube behaving? xx
    Everything is fine, but I did manage to get a nice little visitor in the wound by the name of staphylococcus. Just halfway through some antibiotics….trying to evict him as we speak 😅😅😅😘😘😘

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  • Ellie
    replied
    JamesW All healed nicely and tube behaving? xx

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  • JamesW
    replied
    Originally posted by WheelsOfSteel View Post
    Now you can go into a restaurant and order steak, chips, a blender and a funnel
    🤣🤣🤣🤣🤣🤣🤣🤣

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  • WheelsOfSteel
    replied
    Now you can go into a restaurant and order steak, chips, a blender and a funnel

    Leave a comment:


  • JamesW
    replied
    Thanks everyone for your kind messages 🥰

    Leave a comment:

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