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  • Gillette
    replied
    Originally posted by Ellie View Post
    Just checking Dina;

    The anaesthetist will be present during the PEG procedure to monitor your vitals and not because you're having a GA? (I know you said before that you'll be using the Nippy during the procedure)

    Oh to be in France......

    Love Ellie.
    Hi Ellie,

    The anaesthetist for the other procedure is the one in France. And he is going to use a spinal not a GA. I think, for the PEG, I use the Nippy and have some sort of sedative, but I will not have a GA.

    Thank you for double checking.

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  • Ellie
    replied
    Just checking Dina;

    The anaesthetist will be present during the PEG procedure to monitor your vitals and not because you're having a GA? (I know you said before that you'll be using the Nippy during the procedure)

    Oh to be in France......

    Love Ellie.

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  • Gillette
    replied
    That’s true. Mind you, there’s no chance of the second procedure being brought forward as the anaesthetist is in France!

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  • Dis1960
    replied
    Originally posted by Gillette View Post
    until 02 September when I am scheduled to have a PEG fitted and another procedure
    You also are in the right place if there are any cancellations. Good luck and good wishes

    Leave a comment:


  • Gillette
    replied
    Thanks, Doug. Thanks, Ellie.

    I don’t mind being an in-patient - at the moment it is the best place for me. The last three weeks have been very difficult for all sorts of reasons and taken their toll on each of us. They have also prompted a more speedy advance in my MND - and it was going fast enough before.

    Leave a comment:


  • Ellie
    replied
    Hi Dina,

    I know you'd rather be at home with carers but I am glad you're being looked after, which must be a relief for bouth you and your partner and lower the stress levels.

    It does make sense to stay until your PEG procedure, rather than send you home into the same situation from which you came.

    Maybe the CHC will be granted "easier" because you'll be an inpatient waiting to be discharged?

    If I can be of any help re meds or whatever, please ask

    big hug.jpg


    Love Ellie.

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  • Doug Carpenter
    replied
    Hi Dina

    I am so relieved to hear that some things are now moving in the right direction, and especially that you're safe.

    Hugs

    Doug

    Leave a comment:


  • Gillette
    replied
    Originally posted by Lynne K View Post
    Hi Dina, it's good that you are safe in Wythenshawe. I too hope that your hospital bed is comfy and that the staff look after you well. I also hope that Peter is ok on his own. Lynne
    Thanks, Lynne. The staff have been lovely. Peter and I agree that being admitted was a good thing. It may well be that I stay in until 02 September when I am scheduled to have a PEG fitted and another procedure - it depends on when a care package can be set up.

    Leave a comment:


  • Gillette
    replied
    Originally posted by Dis1960 View Post
    Hugs to Dina both for the terrible treatment by the social worker and your read:ittance tó Wythenshawe

    Could your GP help with finding carers or chc forms
    Thank you. Hugs always gratefully received.

    My OT emailed yesterday to say that the wheels have started turning for a fast-track application for CHC funding.

    Leave a comment:


  • Dis1960
    replied
    Hugs to Dina both for the terrible treatment by the social worker and your read:ittance tó Wythenshawe

    Could your GP help with finding carers or chc forms

    Leave a comment:


  • Lynne K
    replied
    Hi Dina, it's good that you are safe in Wythenshawe. I too hope that your hospital bed is comfy and that the staff look after you well. I also hope that Peter is ok on his own. Lynne

    Leave a comment:


  • Kayleigh
    replied
    Hi Dina,

    It's probably good you had an appointment at Wythenshawe today because someone there might be able to get things organised concerning an urgent CHC application for you. Sorry you've had to be admitted into hospital though. Hopefully the doctors and nurses are making you comfortable and the food is ok.

    I hope social services realise the stress and worry you and your partner have been put through, due to their uncaring attitude and their failure to provide you with the carers you are entitled to.

    I was reading the Care Act 2014 today and was interested to find out that the Local Authority not only has a statutory duty of care towards you but also to your partner (as he is your carer). It sounds like social services have probably been failing in their duty of care where both of you are concerned, because the non-provision of carers could potentially have a negative affect his health and well-being, as well as yours.

    It's terrible that despite all the legislation and NICE guidelines, MND patients and their carers still don't always receive the respect and high standard of treatment and care they should be getting and are legally entitled to.

    Hopefully, the situation concerning your carers will be rectified very soon. I also hope you and your partner get much better treatment from social services from now on.

    Hopefuĺly your hospital bed is nice and comfy - I expect you could do with a good night's sleep, as today has probably been particularly tiring for you!

    I hope you have a restful sleep tonight and a relaxing day tomorrow.

    Love Kayleigh xx
    Last edited by Kayleigh; 20 August 2019, 20:42.

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  • Terry
    replied
    Hi Dina,

    I am sorry to hear that you are back there but hopefully your husband can recop and they will sort out a proper care package before you go home.

    Best wishes, Terry
    Last edited by Terry; 20 August 2019, 22:59.

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  • Gillette
    replied
    Thank you for your support, everyone. I can’t tell you how welcome it is.

    Leave a comment:


  • Gillette
    replied
    Hi Everyone,

    I had an appointment at Wythenshawe Hospital this afternoon. When they heard how things have been they suggested I be admitted and I agreed so that’s where I am for the time being.

    Leave a comment:

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