Hello

[Marc from London]

Hi guys.

hope all had a good as possible Christmas break

i haven’t been online here a lot in the last few month as I find using relevant groups on FB a bit easier to handle tbh.

nonetheless a small update from my side.
my ALS progresses as one would expect. Can still walk also not as good anymore. My speech hand swallowing are so far still mostly good. My hands got a bit weaker.
I am still participating on the wav study but yet can’t tell whether the experimental drug is any good.

best wishes
marc