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Peg consultation

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    Thankyou x youre from my part of the world i think, Bournemouth way?


      Hello Cat,
      Yep, I live in Bournemouth but my Fiancé lives west Dorset so I’m half and half, what part of the neck of the woods are you


        Hayls, you won't know yourself once you have a feeding tube!! It takes the daily stress away re drinking enough etc. and it'll be a relief for your fiancé too, not to see you struggle.

        Best wishes to you both.

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


          I'm I'm lymington way,other half lives in southbourne. Do you go to soton MND centre or is there a dorset alternative? Anyway, feel free to pm me
          Everyone does say the peg/rig helps ease worry, just like my Walker does , there's always that bit of adjustment before you see it prevent something or make things easier and really rate it..


            Awww thank you Ellie, your so right, he’s always checking I’m OK and every slight cough I have, he’s a rabbit in headlights, he’s worrying about me and I’m worrying about him worrying too much lol, we are a right pair
            I’m dreading the drinking more and more, Cat, I’ve had similar concerns about the procedure but I must admit my worry multiple times a day of wondering if this mouthful will cause a spasm and make me block my airway/ throat or aspiration that gives me a chest infection, I’m so fed up of feeling like this that I’m ready to do what’s necessary to ease the pressure off myself, fingers crossed.
            As I’m newly diagnosed, I’ve been told there is a group locally and there was no meet in August so first meet is the 24th September, my Speech and language therapist explained that many members are not near my age however I explained that some days I feel 100 and some days I’m 21 again so I’ll love to meet anyone of any age because I believe we are as young or as old as we feel, I have no idea how to PM but it’s nice to meet you