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  • Terry
    replied
    Hi Catsparkle;

    It's a big step in your mind but a short small opp carried out with local anesthetic normally.

    It is there for a back up if needed.

    Love Terry

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  • Catsparkle
    replied
    Thankyou, my breathing was checked and was fine, so they'll sedate me. Good luck with your procedure Gillette, lots of love x

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  • Gillette
    replied
    Hi Catsparkle,

    Sorry to hear that your condition has worsened. I am in a similar position and am due to have my PEG fitted next Monday .

    Do you have NIV? I have recently been told that the NIV will be in use during the procedure. If you don't have any breathing difficulties I imagine they would use regular sedation to insert the PEG.

    All the best for your assessment on Thursday.

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  • Lynne K
    replied
    Good luck with your Peg consultation. I'm sorry about your deterioration Catsparkle. Take care. Lynne

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  • Catsparkle
    started a topic Peg consultation

    Peg consultation

    Hi all, I've got quite a bit worse in the past 6 months. Have bulbar involvement now,and what a bugger it is when you cant go to the loo by yourself anymore! I love having the carers in though. And my beloved ex is working through my bucket list with me 😁
    So,yes, peg consultation this Thursday , i know its sensible, my swallow is going as is my last arm, but ive been finding it very upsetting..
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