Very much appreciated, thankyou ellie and for your tips about talking to the carers
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Given that carers in the UK need no formal carer qualifications, I doubt they need any food prep related certs
It's basic common sense but, as we all know, can be sadly lacking in some carers, so Lisa, if you aren't comfortable with anything a carer does, do tell them and explain why. It really helps both of you if you're open and honest with them - and that may include asking your palliative care nurse to explain to the carer that you may sometimes put your foot in it by not wording things properly.
Big hug to you.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Hi Lisa,
Hope you're feeling a bit better and that your big girl got on well on her first day of secondary school
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Thankyou lovely x we're busy putting labels in uniform (well, im giving instructions 😂
and arranging the little big ones to walk together. Fingers crossed for tomorrow!
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Im feeling loads better, went to brownsea island today,saw a red squirrel!Comment
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Glad that you feel better xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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I'm a great supervisor too Lisa
Last edited by Ellie; 4 September 2019, 19:38.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Hi Lisa,
Pleased to hear that you are feeling alot better. Wow a red squirrel, they are rare. I don't think I have ever seen one. Only the common grey ones.Comment
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Guess what,......I have got a chest infection. First one in years.Comment
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Oh no Sheila, you poor thing
Are you on antibiotics?
Get plenty of rest and pamper yourself.
Wishing you a speedy recovery.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Thank you Ellie, yes I am on antibiotics . It must have been all that talking about it with Lisa . Husband and son are looking after me.
Love Sheila.Comment
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Hi Sheila;
Hope you soon improve.
Love TerryTB once said that "The forum is still the best source for friendship and information."
It will only remain so if new people post and keep us updated on things that work or don't work and tips.
Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.Comment
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Thanks Terry,
I am not too bad today.
Love Sheila.Comment
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Oh no Sheila,
Hope you feel tons better soon and that you are getting pampered and looked after.
Take Care,
Love Debbie xComment
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Pleased to hear that Sheila:Originally posted by Sheila View Post
Be careful for a few days and rest.
Hugs TerryTB once said that "The forum is still the best source for friendship and information."
It will only remain so if new people post and keep us updated on things that work or don't work and tips.
Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.Comment
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