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    #16
    Very much appreciated, thankyou ellie and for your tips about talking to the carers

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      #17
      Given that carers in the UK need no formal carer qualifications, I doubt they need any food prep related certs

      It's basic common sense but, as we all know, can be sadly lacking in some carers, so Lisa, if you aren't comfortable with anything a carer does, do tell them and explain why. It really helps both of you if you're open and honest with them - and that may include asking your palliative care nurse to explain to the carer that you may sometimes put your foot in it by not wording things properly.

      Big hug to you.

      Love Ellie.
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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        #18
        Hi Lisa,

        Hope you're feeling a bit better and that your big girl got on well on her first day of secondary school

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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          #19
          Thankyou lovely x we're busy putting labels in uniform (well, im giving instructions &#128514and arranging the little big ones to walk together. Fingers crossed for tomorrow!

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            #20
            Im feeling loads better, went to brownsea island today,saw a red squirrel!

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              #21
              Glad that you feel better x
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
              I'm staying positive and taking each day as it comes.

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                #22
                I'm a great supervisor too Lisa
                Last edited by Ellie; 4 September 2019, 19:38.
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                  #23
                  Hi Lisa,
                  Pleased to hear that you are feeling alot better. Wow a red squirrel, they are rare. I don't think I have ever seen one. Only the common grey ones.

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                    #24
                    Guess what,......I have got a chest infection. First one in years.

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                      #25
                      Oh no Sheila, you poor thing Are you on antibiotics?

                      Get plenty of rest and pamper yourself.

                      Wishing you a speedy recovery.

                      Love Ellie.
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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                        #26
                        Thank you Ellie, yes I am on antibiotics . It must have been all that talking about it with Lisa . Husband and son are looking after me.
                        Love Sheila.

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                          #27
                          Hi Sheila;

                          Hope you soon improve.

                          Love Terry
                          TB once said that "The forum is still the best source for friendship and information."

                          It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                          Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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                            #28
                            Thanks Terry,
                            I am not too bad today.
                            Love Sheila.

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                              #29
                              Oh no Sheila,

                              Hope you feel tons better soon and that you are getting pampered and looked after.

                              Take Care,
                              Love Debbie x

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                                #30
                                Originally posted by Sheila View Post
                                Thanks Terry,
                                I am not too bad today.
                                Love Sheila.
                                Pleased to hear that Sheila:

                                Be careful for a few days and rest.

                                Hugs Terry
                                TB once said that "The forum is still the best source for friendship and information."

                                It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                                Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                                Comment

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