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Muscle spasms

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    Hi i used to get severe leg spasms or juddering as i would call it mostly at night when in bed and relaxed they would start i was given botox injections every 3 months 2 in the thigh 2 in the calf and 2 in the ankle and it did the trick they completely stopped that was 5yrs ago i'm still having them now


      Hi Ellie, you aren't alone about your ovarian cyst. I was 5 months pregnant with my first child when they took out a huge one, 5. 5 inches by 2. 5 inches I was told. Are you going to have yours removed? When I had it, it was a deep general anaesthetic. Well at least it was supposed to be. I was aware throughout. Modern anaesthetics are much better and key hole surgeries for lots of procedures. Lynne
      Last edited by Lynne K; 17 October 2019, 07:51.
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.


        Thanks Lynne.

        I'm in a "Watchful Waiting" stage at the moment and is being monitored with scans.

        It has grown but thankfully not too painful - it's my current niggle. I can't have a general anaesthetic and hope it behaves itself by shrinking or disappearing, I don't fancy the thoughts of any op!

        They are usually removed by keyhole surgery these days, under a general, but I'd need an epidural if I were to have it removed - fingers crossed it won't come to that.

        On the plus side, at least the scan didn't show that I'm pregnant

        Take care Lynne.

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.


          Hi Ellie
          Do hope you get it sorted and without too much pain. Bonus you are not pregnant!!!!

          Judy x