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'Liquid Hope' - PEG and nutrition

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  • FlyingSoupDragon
    replied
    Approaching the time when a PEG gets fitted makes you curious doesn't it? I haven't done any detailed research but broadly understand the process and some of the issues. Reading Eric Valor's post brought forward questions we must all have - what exactly is it that dribbles down that tube? How effectively does it nourish, sustain and dare I say it, satisfy?

    It doesn't necessarily follow that what is given to the US goose is fed to the British gander, but can the concoctions be that different given the job they do - keep us alive and in trim to fight on.

    My wife is very focussed around the nutrition issue, she lovingly builds my fortifying soups from a huge array of veggies. The idea that these, or something like them, might make it down a PEG tube is intriguing and a great topic for conversation with others, some of whom (here) have skin in the PEG game.

    After all, it's been said many times that we are what we eat.

    Thanks for the responses folks.

    PS: The I pulled the graphic from the web.

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  • Guest's Avatar
    Guest replied
    Sylvia, I debated long and hard but it was the common sense approach that swung it. I felt it was better being done sooner rather than later, while I was fit. Now I know that, if I need to in the future, I can get sustenance through it, can take any medication through it. I only use it to flush it out with water at the moment. I am pleased I had it. It is something of an insurance policy. But I know some people never have one. It is your own personal decision. Much love. Joycie x

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  • Guest's Avatar
    Guest replied
    My Trevor had a PEG. The food was produced by Fresubin. It was delivered to the door every four weeks following a phone call weeks previously to make sure the date was convenient. It was an excellent service. There was a helpline to phone if any problems with the PEG arose during times when his dietician was not available (say out of hours).
    Trevor did get constipation issues a couple of weeks before he died despite his particular food being the "energy fibre" option. He was very well hydrated too. I am pretty sure that the constipation was not so much a result of the food but of the fact that he was less able to evacuate normally simply due to be exhaustion and the MND itself.
    Don't fear the PEG or food in this country folks.
    X Nettie.

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  • Guest's Avatar
    Guest replied
    Hi

    My hubby has refused to have one. Has anyone else decided not to have a PEG/RIG? Has anyone changed their mind and what made you change your mind to have one?
    Thanks
    Sylv

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  • Guest's Avatar
    Guest replied
    yeah thats the one.

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  • Guest's Avatar
    Guest replied
    I had a rig In sheffield in January. I would imagine that you had the same, Steve. I have no balloon, no nurse involvement, just a feeding tube that has to be rotated every week. Joycie. X

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  • Terry
    replied
    I think that they do a RIG when the breathing is okish and a PIG or a RIG when there is a concern. I don't think that all hospitals offer or do PIG's and my hospital only done RIG's for people with Mnd, at least that is what she said to me.

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  • Guest's Avatar
    Guest replied
    i wonder how they decide between pig and rig then.

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  • Terry
    replied
    Hi Steve;

    It appears that both PEG and a PIG are done by putting tubes in from the inside and going out and a RIG goes from the outside in. Both PIG and PEG use a plastic disc on the inside and are both long term tubes where a RIG uses a balloon inflated with normally 5ml of water and last about 3/4 months before being replaced at home.

    The main difference between PEG and a PIG is the method they use to find the site hole.

    Love Terry

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  • Billie
    replied
    Hi
    My Mum had a RIG and it's definitely got a balloon. The district nurse comes weekly to maintain it which involves inflating it with water.
    She was told a RIG would be better as she had breathing problems
    It was done a year or so ago
    Sarah

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  • Guest's Avatar
    Guest replied
    it may have been a pig, although i'm not sure what the difference is between a pig or a rig. i know i wasn't fit enough for a peg.

    there's a hole in the literature that i believe is being closed.

    sorry about your tube!

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  • Terry
    replied
    I think your experts have named it wrongly. Looking at the info on the net, a Rig is inserted through the skin into the stomach.

    To me it sounds like you have a PEG or maybe a PIG.

    I'm no expert but would put money on it.

    Anyway, I think you have a better method than me.

    Love Terry

    PS:- Where did you get that image from Norman?

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  • Guest's Avatar
    Guest replied
    during my rig procudure the whole tube went through my mouth so inside to out. they slipped my bipap mask to the side for a split second to feed it down.

    trust me, disc inside and rig procedure. no balloons here.

    maybe it varies place to place, i might be lucky.

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  • Terry
    replied
    Hi Steve;

    I was pushed into a RIG as well by local hospital even though my breathing was Ok. Should have had it done at Addenbrooks as they were more than happy to do a PEG. Still we all make mistakes or perhaps don't push hard enough.

    I think you're wrong or we have a misunderstanding about Balloons and discs. I am talking about what's inside your stomach.

    I think that the PEG tube is fitted from the inside so can have a disc to seal and retain the tube inside the stomach and on the outside skin. Where as in a RIG procedure the tube is inserted from the outside inwards, making it not possible to have a disc on the inside so that is why they use a balloon to seal and retain the tube inside and a disc on the outside of the skin.

    Not sure but a PIG might use a balloon on the inside???

    Love Terry

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  • Guest's Avatar
    Guest replied
    aah, well i had a rig and the disc.

    i was told before my procedure that there are two systems, the balloon and the disc but they were not linked to the type of procedure. ie. you could have a peg with a balloon or a rig with a disc or vice versa.

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