Quinine

[Terry]

That's so good to hear Susan;

Life an't so good for us but if we can keep pain to a minimum, it's better.

Love Terry

Hi Terry,

It has actually been amazing taking quinine. I thought it would take a bit to kick in (to be fair I only got bad cramps a couple of nights a week anyway) but I have had no cramps at all since I started taking it which is fantastic.

[Terry]

Hi Susan,

How are your leg cramps, did anything make them a bit better.

Love Terry

hello Terry
I've cleared some of the inbox f you want to PM me
cheers
Darryl

[Terry]

Hi Pacer,

It appears that if you introduce me you will get a reward and so will I.

It might be too late as I have signed up but have not ordered yet.

I tried to PM you but your full.

Love Terry

Hello Terry
Just had a look on iherb and it comes out at £14.3 I don't have a promo code delivery is a couple of weeks on the cheapest postage.
Cheers
Darryl
P.s. you only pay duty on the goods not the postage as well.

[Terry]

Thanks Darry;

It has never been easy stuff to find. So, I guess you buy one lot of 100 X 300mg tabs a time at a cost of $19.75 and p 7 p $4, that comes to about just over £17. I have been bitten by import taxes before, your advice please. Any other costs? Have you a promotion code for discount?

Regards Terry

Hello Terry
I use Kirkland and get them from I herb in the states just keep the order under £15 or the administration charge from the curriers is offensive.
I take 1 or 2 per hour when I can/remember.
Cheers
Darryl
Ps postage is generally under $4.

[Terry]

Hi Pacer;

What AKG tablets do you take, how many and where do you get there from, etc.

Thanks, Terry

Hello Susan
For cramps I take AKG tablets and a protein shake fends them off.
I did a cycle ride from Cardiff to Conway over three days just after diagnosis. The point is after the first day in the saddle I went for an evening meal during the meal I was suffering severe cramps through the meal.
The following day at the end of the ride I had a protein shake and did not suffer from cramp.
Hope this helps
Cheers
Darryl

Thank you so much. I just rushed to look and mine is 300mg so I am sure you are right Sarah. Interesting your Mum went down from 300 to 200. I think I need to see if it works really.

Ellie, thanks so much. I hadn't thought of potassium rich foods but might have to rush and buy some bananas now, and spinach. Can't stand avocado so will have to ignore that one.

I do have an electric blanket but it isn't on while I sleep and you are spot on - I can't see myself leaping out of bed in the dead of night to heat up something for the cramps. Fingers crossed the quinine works I think.

[Billie]

Sorry Susan - it was probably 200 mg! I think ml is liquid? It was definitely in tablet form and she took it an hour before bed
Sarah x

[Billie]

Hi Susan
My Mum was prescribed I think initially 300 (ml?) and then 200
It did work work for her. She was getting terrible cramp that was keeping her awake all night.
Good luck x

[Ellie]

Hi Susan,

If it's cramp, then lots of people get good relief from prescription strength Quinine. You should also try to eat food rich in potassium - e.g. bananas, avocado, spinach. Heat is also good for cramps so an electric underblanket or a heat pack should ease them (though who'd get out of bed @2a.m. to heat one )

I don't get cramps, but take Tizanidine before bed and Baclofen 3x day for spasticity/high muscle tone.

Ellie x.

[Terry]

Hi Susan;

I think that it helps a bit. When I stay have a weeks rest bite in the hospice I now tend to take it as I get a lot more cramps there. It's worth trying as is Baclofen and a muscle relaxant like Larazipam, (Ellie uses a better one).

Let us know how you get on.

Love Terry