Supplements what are you taking?

[EvelynMW]

Blimey! I am so glad i asked for a topic on treatments, medications and supplements - would never have seen these posts otherwise. Loads of memberrs i've not seen anything from before too - i trust all of you are still with us? As this thread started in 2017, i feel very nervous saying that. i am a very fortunate slow progress MNDer.

I have been taking cod liver oil, and a vitamin B hi-strength complex - both for many years before diagnosis. I have low bone density, according to 2 different sets of scales, so have been taking chonditrin. About to stop that though. Not seen any benefits from any supplements i have ever taken.

I am also permanently on sertraline (anti depressant) having been depressed, on and off, since i was 8, and am now on 2 riluzole a day. The only medication, as i understand it, that is currently proved to have an effect.

Phew! That felt like a lot of writing, so i will stop now.

[matthew55]

I do syringe a drink called nutrition but any complete drink will do. 😁🤗😉😍xx

[Lorian]

I can’t live without my daily iron intake. I bought these powder supplements that you dilute in water, so it’s super convenient to use and the taste is not that bad as well. Iron is amazing for your general health. Personally, I naturally lack iron in my body, so my skin is always dry, my scalp is itchy, and I always have head migraines. These are some common symptoms that tell you the lack of iron in your system. When I work out, I even increase my intake, plus I also add this 4 gauge pre workout supplements to give me a kick. Overall, I have been seeing amazing results so far.

hello. concerning cbd oil. here in glastonbury cbd oil is available in the health food shop but only at 10 per cent dilution, it is available in a nother shop , at these percentages.{sorry cant seem to find percenty key on my lappy} 17,18. 28 and 38. all for under 15pounds i think,i assume that the stronger the better. i know a fewe people who take this daily x2, half a pea size on ur finger,under ur tongue and let it slowly dilute, guess it can be taken in a drink but i think its best not to heat it up as this most likely damages some of its properties.... if anyone wants some i will ask the guy in the shop if he does postal orders but they are always super busy as the shop sells other stuff,made fro hemp, clothing, etc etc. if they dont want to post it,i can post it for anyone on here.....jeremy

Hey - that sounds really interesting, thanks for taking the time to write that. Do they have a website where I could look at their stuff? I've never seen it as pure oil before

hello. concerning cbd oil. here in glastonbury cbd oil is available in the health food shop but only at 10 per cent dilution, it is available in a nother shop , at these percentages.{sorry cant seem to find percenty key on my lappy} 17,18. 28 and 38. all for under 15pounds i think,i assume that the stronger the better. i know a fewe people who take this daily x2, half a pea size on ur finger,under ur tongue and let it slowly dilute, guess it can be taken in a drink but i think its best not to heat it up as this most likely damages some of its properties.... if anyone wants some i will ask the guy in the shop if he does postal orders but they are always super busy as the shop sells other stuff,made fro hemp, clothing, etc etc. if they dont want to post it,i can post it for anyone on here.....jeremy

Hi jamesob
I will try whatever to arrest my TO slippery slope and give me some hope otherwise I could have been gone by now.
Do you get your CBD in the uk ? Or are you in a legalized county ?
Post up an introduction we will take an interest in your story. Take care Dude TIANDB.

Hi @TIANDB - thanks for making me feel welcome I'm going to leave an intro now

I'm from the UK - CBD is fully legal here in the UK. I'm from London ( at least I think so?!) because it doesn;t have any THC . I vape for my sins I use a CBD vape oil brand called elevate from here

I'm not sure what my doctor would say but at the very least it helps with my appetite and getting my mind to a state where Im easily able to switch off and rest before bed....

Thanks again bro - looking forward to better integrating with the community here and hopefully learning and sharing with you all

Hi jamesob
I will try whatever to arrest my TO slippery slope and give me some hope otherwise I could have been gone by now.
Do you get your CBD in the uk ? Or are you in a legalized county ?
Post up an introduction we will take an interest in your story. Take care Dude TIANDB.

To be honest I'm just trying to eat healthy rather than rely on herbs , pills and powders - more veg and fish seems to be working a treat.

Only extra nutrients I have are a generic multi vitamin and I've been experimenting with CBD

x

[Annb]

Thank you TIANDB, I was very interested and watched this presentation. However, I did notice that there are quite a few warnings on the internet about possible side effects when using this supplement. I might still give it a trial myself though.

An interesting ALSuntagled video on the benefits maybe of Curcumin ?
https://www.neals.org/for-people-wit...her-als-x-file

A Bump for this Thread as interesting for newcomers ..

TIANDB long List.

Hi Guys I will throw in my TIANDB long List and you will have to google or web search for clues. I actually got most of other MND sites it is a long list but I have been slipping down this slope quite quickly. Not halted anything yet although I feel somewhat positive here goes Ho Ho.
I take in 4's so 1 x 4 or 2 x 4 a day or sometimes 3 x 4 or 4 x 4 and a Bedtime 4 usually..
Nettle Tea +White Peony leaf Tea and Green tea + peppermint Tea, Earl grey Tea, Honey, Bio Yogurt Drinks, ( Coconut Oil, E V Olive Oil & Butter for cooking),
Vitamin C effervescence 1000mg, Multi V effervescent, Distilled smart water and a shot of AppleCiderV and Amaretto, Daily magic juice ha. Added CBD oil 0.25ml x 4 Daily..

Cod liver Oil 1000mg ( Vit A and D )
Vitamin B Complex
Vitamin E complex
ALA 300mg

TMG 1000mg
NAC 600mg
Selenium 200 mcg
Milk Thistle 8500mg

Curcumin complex 800mg
Bioperine 10mg
Cayenne Plus ( Cayenne pepper 450mg, Ginger 210mg, Hawthorn 210mg )
Nicotinamide B3 500mg

Rosemary 400mg
Burdock root 460mg
PEA ( Palmitoylethanolamide ) 400mg
Teasel root 500mg

Creatine 3500mg
Taurine 500mg
L- theanine 200mg
Beta Glucan 250mg

Calcium, magnesium, Zinc ( C carbonate 1000mg, M Oxide 400mg, Z sulfate 15mg )
Iodine Kelp 225mg
Gotu kola 420mg
Zinc Gluconate 50mg

Aspirin 150mg
Ibuprofen 200mg
Paracetamol 500mg
Super Cinnamon Complex w/ Chromium & Biotin.

Milk thistle 1000mg Dandelion 350mg yellow Dock 350mg Beet Root100mg Combo.
Prostaid. Saw palmetto 544mg Pygeum Bark 454mg Nettle 255mg
Jai Wei Xiao Yao Wan ( Happy Pills )
Horny Goat Weed Complex 500mg

Bedtime. selection.

Magnolia bark 400mg
Lions Mane 500mg
Valarian Root 1200mg
Licorice Root 450mg
Malatonin 12mg
Lithium Orate 5mg
Bacopa monnieri 500mg
Andrographis Paniculata Extract
Herbal Laxative Complex ( Cascara 75mg, Senna 438mg + 465mg Blend inc licorice root, Fennel Seeds and Liva Ursi leaves )
Wild Copper 2mg

Are they helping ? Not yet seemingly as early days but I am positive and trying . Awaiting gene check result : ( C9orF72 confirmed ) Any comments welcome..

Take care all. TIANDB

[Ali_Chris]

Hi Ali, i could help noticing that you mention CBD in your list of supplements. Would you care to share how long you've been taking Canabinoid. It is not yet available in WA, although it is now i believe legal if prescribed by a medical officer. Any observations? It is being currently cultivated and will be on the market and i might myself trial it out. it kind of help if one receives some feedbacks beforehand.
Best wishes
Marieline

Hi Marieline. I have been taking for a couple of months. As far as observations, nothing apart from my hands seem to not shake as much and I have got a bit more strength in them. I can type as fast as I used to (almost) and I have noticed I can pick my ebook up now.

Hi Ali, i could help noticing that you mention CBD in your list of supplements. Would you care to share how long you've been taking Canabinoid. It is not yet available in WA, although it is now i believe legal if prescribed by a medical officer. Any observations? It is being currently cultivated and will be on the market and i might myself trial it out. it kind of help if one receives some feedbacks beforehand.
Best wishes
Marieline
And Rumba I use Vit B12 since the early years, injection form, initially it was weekly, then fortnightly, then monthly, now it's quarterly.
Co Q10, D3, Coconut oil, Colostrum, Magnesium, Zinc, Multvitamin, Vit C (high dose), seaweed, and few only when i need.
cheers

[Ali_Chris]

Here is my stack. Anti oxidants and neuro protective.
Double Strength Turmeric
Vit D3
Grape Seed Extract (Vit E)
CoQ 10
Magnesium Taurate
Rilazole
Canabanoid (CBD)
AAKG Mega Hardcore with Citruline Malate

Do they work? I dont know as I dont have a self that has never taken supplements. I hope they do and I will continue taking them.