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    Supplements what are you taking?

    Hi all,

    Who is taking supplements and what are you taking that you find helps you?

    #2
    Hello Rumba,

    I take the following:

    Moringa
    Superba krill oil
    Turmeric
    Vitamin D
    Extra virgin coconut oil

    I can't confirm the efficacy of these and I have a slower version of MND but I do believe that my immune system is helped as I am generally free from colds.

    Best wishes,
    Barry
    I’m going to do this even if it kills me!

    Comment


      #3
      Hi Rumba, we are exploring supplements also:
      Cod liver oil with vitamins A and D (to keep colds at bay)
      Taurine (for building muscle strength)
      Magnesium (to help with cramps)
      Vitamin B complex (for energy)
      Folic acid ( for neural pathways)
      And milk thistle (to help to protect the liver)

      All of these are fairly cheap and can be found in the chemist

      I am going to look at moringa, I am also going to look at combining the magnesium with calcium

      Best wishes

      Comment


        #4
        Hello Fru
        I have been recently diagnosed MND. I was being treated for carpal tunnel and a possible back problem due to my walking becoming slow and difficult.
        I have been considering taking supplements. DiD you decide to take these yourself or were you advised to? I would be interesting in any other members who have tried supplements to help with symptoms.

        Kind regards
        Ann

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          #5
          Hi Ann,
          My consultant prescribed vitamin c and a multivitamin daily. He warned me that the prescribed vitamin c tasted disgusting and it certainly did. So now I just buy a chewable version. The multivitamin was a capsule which was too big to swallow and I don't yet have swallowing problems. So again, I just buy a chewable version.
          Bern

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            #6
            Hi Ann, I take a lot of supplements!
            Here goes-
            Vitamin C
            Vitamin E
            Vitamin B Strong
            Mitochondria
            Chlorella
            Zinc
            Selenium
            Butyric acid
            Toxaprevent
            I had a hair analysis done and the results showed that I had high levels of mercury and aluminium.
            I also take extra virgin coconut oil and Bulletproof oil.
            I'm on a high fat, high protein, anti inflammatory diet, which sadly means very low sugar!

            Comment


              #7
              Originally posted by Newbie17 View Post
              Hi Ann, I take a lot of supplements!
              Here goes-
              Vitamin C
              Vitamin E
              Vitamin B Strong
              Mitochondria
              Chlorella
              Zinc
              Selenium
              Butyric acid
              Toxaprevent
              I had a hair analysis done and the results showed that I had high levels of mercury and aluminium.
              I also take extra virgin coconut oil and Bulletproof oil.
              I'm on a high fat, high protein, anti inflammatory diet, which sadly means very low sugar!
              Hi Newbie, Where did you get your hair analysis done? Is it somewhere in the UK? How much it cost?
              Cheers

              Comment


                #8
                Hi Jay
                It was through a friend who is a highly qualified nutritionist.
                I'm sorry but I don't know where it was sent but I'll try and find out for you.
                All the best x

                Comment


                  #9
                  Jay,
                  The company is Analytical Research Labs ( an American company) through The Edinburgh Centre of Nutrition and Therapy (0131 229 1077). Probably best to be referred by a Therapist so they can interpret the results.

                  Comment


                    #10
                    Hello Ann, Well, we have explored lots of different vitamins and have finally given up for the time being. Sometimes we feel pressured into trying things such as turmeric as 'friends' act horrified as if I am denying my other half something that will help him if I don't have them available. The drawer in our kitchen has got everything in it, I can assure you. The one thing that I like is coconut oil, for me, not Ed as I think it helps my arthritis, I seem to have less pain when I take that. The only thing our GP advised was folic acid. I think that you can overdo it with certain things. Hope this all helps
                    Best wishes Fru.

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                      #11
                      Here is my stack. Anti oxidants and neuro protective.
                      Double Strength Turmeric
                      Vit D3
                      Grape Seed Extract (Vit E)
                      CoQ 10
                      Magnesium Taurate
                      Rilazole
                      Canabanoid (CBD)
                      AAKG Mega Hardcore with Citruline Malate

                      Do they work? I dont know as I dont have a self that has never taken supplements. I hope they do and I will continue taking them.

                      Comment


                        #12
                        Hi Ali, i could help noticing that you mention CBD in your list of supplements. Would you care to share how long you've been taking Canabinoid. It is not yet available in WA, although it is now i believe legal if prescribed by a medical officer. Any observations? It is being currently cultivated and will be on the market and i might myself trial it out. it kind of help if one receives some feedbacks beforehand.
                        Best wishes
                        Marieline
                        And Rumba I use Vit B12 since the early years, injection form, initially it was weekly, then fortnightly, then monthly, now it's quarterly.
                        Co Q10, D3, Coconut oil, Colostrum, Magnesium, Zinc, Multvitamin, Vit C (high dose), seaweed, and few only when i need.
                        cheers

                        Comment


                          #13
                          Originally posted by marieline View Post
                          Hi Ali, i could help noticing that you mention CBD in your list of supplements. Would you care to share how long you've been taking Canabinoid. It is not yet available in WA, although it is now i believe legal if prescribed by a medical officer. Any observations? It is being currently cultivated and will be on the market and i might myself trial it out. it kind of help if one receives some feedbacks beforehand.
                          Best wishes
                          Marieline
                          Hi Marieline. I have been taking for a couple of months. As far as observations, nothing apart from my hands seem to not shake as much and I have got a bit more strength in them. I can type as fast as I used to (almost) and I have noticed I can pick my ebook up now.

                          Comment


                            #14
                            TIANDB long List.

                            Hi Guys I will throw in my TIANDB long List and you will have to google or web search for clues. I actually got most of other MND sites it is a long list but I have been slipping down this slope quite quickly. Not halted anything yet although I feel somewhat positive here goes Ho Ho.
                            I take in 4's so 1 x 4 or 2 x 4 a day or sometimes 3 x 4 or 4 x 4 and a Bedtime 4 usually..
                            Nettle Tea +White Peony leaf Tea and Green tea + peppermint Tea, Earl grey Tea, Honey, Bio Yogurt Drinks, ( Coconut Oil, E V Olive Oil & Butter for cooking),
                            Vitamin C effervescence 1000mg, Multi V effervescent, Distilled smart water and a shot of AppleCiderV and Amaretto, Daily magic juice ha. Added CBD oil 0.25ml x 4 Daily..

                            Cod liver Oil 1000mg ( Vit A and D )
                            Vitamin B Complex
                            Vitamin E complex
                            ALA 300mg

                            TMG 1000mg
                            NAC 600mg
                            Selenium 200 mcg
                            Milk Thistle 8500mg

                            Curcumin complex 800mg
                            Bioperine 10mg
                            Cayenne Plus ( Cayenne pepper 450mg, Ginger 210mg, Hawthorn 210mg )
                            Nicotinamide B3 500mg

                            Rosemary 400mg
                            Burdock root 460mg
                            PEA ( Palmitoylethanolamide ) 400mg
                            Teasel root 500mg

                            Creatine 3500mg
                            Taurine 500mg
                            L- theanine 200mg
                            Beta Glucan 250mg

                            Calcium, magnesium, Zinc ( C carbonate 1000mg, M Oxide 400mg, Z sulfate 15mg )
                            Iodine Kelp 225mg
                            Gotu kola 420mg
                            Zinc Gluconate 50mg

                            Aspirin 150mg
                            Ibuprofen 200mg
                            Paracetamol 500mg
                            Super Cinnamon Complex w/ Chromium & Biotin.

                            Milk thistle 1000mg Dandelion 350mg yellow Dock 350mg Beet Root100mg Combo.
                            Prostaid. Saw palmetto 544mg Pygeum Bark 454mg Nettle 255mg
                            Jai Wei Xiao Yao Wan ( Happy Pills )
                            Horny Goat Weed Complex 500mg

                            Bedtime. selection.

                            Magnolia bark 400mg
                            Lions Mane 500mg
                            Valarian Root 1200mg
                            Licorice Root 450mg
                            Malatonin 12mg
                            Lithium Orate 5mg
                            Bacopa monnieri 500mg
                            Andrographis Paniculata Extract
                            Herbal Laxative Complex ( Cascara 75mg, Senna 438mg + 465mg Blend inc licorice root, Fennel Seeds and Liva Ursi leaves )
                            Wild Copper 2mg

                            Are they helping ? Not yet seemingly as early days but I am positive and trying . Awaiting gene check result : ( C9orF72 confirmed ) Any comments welcome..

                            Take care all. TIANDB
                            Last edited by TIANDB; 28 September 2018, 12:45. Reason: Updated 28/09/28

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                              #15
                              A Bump for this Thread as interesting for newcomers ..

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