I’ve just been provided with a cough assist machine. I’m told people either love them or hate them . Any views or experiences to share?? Lizzie
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During use, it can feel a bit brutal but the relief of getting rid of the gunk is generally deemed worth it 😏
Good luck Lizzie.
Love Ellie.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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My appointment with the breathing team on 28th October. They came to my usual clinic in Salford Royal from their centre at Wythenshaw. They suggested that I go in to their centre as a day case. They’d show me and Steve how a cough assist device works. We’d be able to practice with it and then when comfortable with it take it home. I haven’t accepted this yet because I’m drinking pineapple every day first to see if this does anything positive and after about two weeks of this it seems to be helping. LynneALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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