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    Cannabis oil

    Hello, sorry if this has been discussed before and I’ve not seen it but wondering if anyone has tried or knows someone who’s tried cannabis oil.

    #2
    Hi Jaxx, Yes I am using it and have done since first being diagnosed in November so I was already getting fatigued and walking badly. It has alleviated neither but cramps, fascillations, spasms in my fingers an overall neck and back pain it has been a considerable help. I take about 2 hours before bed and sleep like a baby refreshed. I think this is my only hope.
    Regards Jerry

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      #3
      Where did you but this from Jerry and how do you know how much to take? Thanks

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        #4
        Hi W,

        I don't know how often Jerry logs on and he lives in Thailand.

        You may find this thread useful in the meantime: http://forum.mndassociation.org/show...please-confirm

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          #5
          Thanks Ellie! x

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            #6
            Hiya, its a bit sort of suck it and see. I use a peice of linguni ( spaghetti ) dipped into it so about 1/8 of your fingernail and just see how it feels. If you take too much it can give me a bad night of dreams etc. tossing and turning but a little bit seems fine. Sorry for late reply as Ellie says I'm in Thailand and don't log on as much as I'd like.

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              #7
              Anybody else taking cbd oil with benefits? And what strength?

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                #8
                I do. I joined a facebook group that gave me lots of advice. Cheds cbd oils or the CBD brothers are highly recommended. Cheds do samples too. I use 80/20 lowest strength capsules 3 times a day and it works as well as Baclofen for me. You have to find your "sweet spot" dosage wise, more is not necessarily better, so you build up slowly until you find a positive effect. For some people they work quickly, for others it takes a while for it too start to work. Hope that helps!

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                  #9
                  Thanks for the advice. I cant take capsules it would have to be drops. Ive seen some 10% strength on zip vit. Was thinking of getting that.

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                    #10
                    Mick uses strong oil. he uses a syringe and it goes under his tongue

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                      #11
                      I self medicate with cannabis which I smoke with tobacco. During the day when I am smoking my legs have no pain. Within 20 minutes after going to bed I get a constant pain in my thighs. Before anyone starts I am not worried about getting cancer, infact I would rather have that. Oh and I am going to start using a 70% strength oil and I will let you know how it goes. Drug trials can be fun! ��
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                        #12
                        matthew55

                        Is that medical cannibis and why not vape it?

                        D

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                          #13
                          Sadly we don't have medicinal weed in the straight laced UK. I hate vaping, if I'm going to kill myself smoking I want to feel it. 😉😄x
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                            #14
                            matthew55
                            We in fact do in the UK and if you go private you can get it prescribed , it's called Bediol and it's top quality pre-ground cannibis flower. I use a Storz & Brickel device called Plenty. Once the vapourizer is loaded, you can use it throughout the day, week or hour depending on your pain. When all the goodness is extracted you just reload it. It does not combust the canabis but temperature is high enough temperature to vaporise the THC and CBD.

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                              #15
                              Good information but it does prove that there is no God but Money. 😉x
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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