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    Originally posted by denise View Post
    Hi Rachelr
    how do you take cucumim? I could try my husband on some.
    thanks Denise xx
    denise I take curcumin daily but tablet form is not readily absorbed into the bloodstream. There is a liquid version available from and although it is expensive it does what it says on the tin.
    I’m going to do this even if it kills me!


      Andy, I’ve taken Riluzone for 3 years and 3 months without side effects. Blood checked every 3 months either at clinic or the GPS. I read somewhere that Riluzone can extend life for between 9 and 18 months. If you decide to take Riluzone, which I hope that you do, make sure that you have it either 1 hour before eating or 2 hours after eating for it to be absorbed properly.I’m still wobbling around home with my walker and wheelchair outside, Lynne
      Last edited by Lynne K; 3 February 2021, 22:02.
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

      I'm staying positive and taking each day as it comes.


        Hi Andy
        Can advise you to go for Riluzol. I am having Rilutor 50mg (different name for the same medicine, hardly available in Delhi).
        Thank you