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  • Jaxx
    replied
    Thank you Barry I was hoping for a good result for speech, sorry it didn’t help you .

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  • Barry52
    replied
    Hi Jaxx,

    I had an online interview with Barbara Buyer, CEO of ALS Worldwide last year. I was given a prescription for 2 months supply of a generic version of neudexta imported from the USA and with the drug cost, shipping and duty it cost me around £170. I had consulted my neurologist prior to proceeding.

    Alas it was all to no avail as the drug increased my spasticity following 2 weeks of consumption so the possible benefits to my speech and swallowing were far outweighed by my lack of mobility. I’m sure with all drugs there is a different reaction in each patient.

    Let me know if you require further information.

    Barry

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  • Jaxx
    started a topic Nudexta

    Nudexta

    Has anyone in UK tried this?
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