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    #1

    Head numbness

    Hello, I'm new to this site having finally been diagnosed with MND in July 2020. I struggled with symptoms for the previous two years but, despite lots of tests, I was assured there was nothing serious to worry about. My biggest problem now, apart from weakness in my arms, is a terrible numb feeling in my head and neck. Despite trying several types of prescribed painkillers, doctors seem unable to offer help. Does anyone else suffer in this way?
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    #2
    Have you tried amitriptyline hydrochloride? I use it and after my evening dose I feel no pain until the following afternoon. πŸ‘πŸ˜x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #3
      Sorry should have said welcome to the livers club. The worst club in town. 😁x
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx
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        #4
        Welcome to the Forum, Baz.

        Numbness, as you describe, isn't really associated with MND - were you diagnosed with the ALS form of MND?

        Don't put everything down to being related to MND - we still get other ailments too. I wonder if a physiotherapist would be of use, given that your GP can't help? What did the Neurologist say?

        Good luck.

        Love Ellie.

        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
        ​

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          #5
          Originally posted by matthew55 View Post
          Have you tried amitriptyline hydrochloride? I use it and after my evening dose I feel no pain until the following afternoon. πŸ‘πŸ˜x
          Thanks for the suggestion, I have tried this without successes. I'm currently taking Tramodol but this doesn't seem to help either

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            #6
            Originally posted by Ellie View Post
            Welcome to the Forum, Baz.

            Numbness, as you describe, isn't really associated with MND - were you diagnosed with the ALS form of MND?

            Don't put everything down to being related to MND - we still get other ailments too. I wonder if a physiotherapist would be of use, given that your GP can't help? What did the Neurologist say?

            Good luck.

            Love Ellie.
            Hi Ellie, I have been diagnosed with ALS. I've seen three different neurologists before diagnosis, all giving different opinions. Thanks for the suggestion of a physiotherapist. I've now been offered pain management which starts this week, hoping this may help!
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              #7
              Welcome to the forum Baz from another Baz aka Barry52. Sorry I can’t comment on your question but maybe I can help with further information.
              I’m going to do this even if it kills me!

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