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  • Barry52
    replied
    Welcome to the forum Baz from another Baz aka Barry52. Sorry I can’t comment on your question but maybe I can help with further information.

    Leave a comment:


  • Baz
    replied
    Originally posted by Ellie View Post
    Welcome to the Forum, Baz.

    Numbness, as you describe, isn't really associated with MND - were you diagnosed with the ALS form of MND?

    Don't put everything down to being related to MND - we still get other ailments too. I wonder if a physiotherapist would be of use, given that your GP can't help? What did the Neurologist say?

    Good luck.

    Love Ellie.
    Hi Ellie, I have been diagnosed with ALS. I've seen three different neurologists before diagnosis, all giving different opinions. Thanks for the suggestion of a physiotherapist. I've now been offered pain management which starts this week, hoping this may help!

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  • Baz
    replied
    Originally posted by matthew55 View Post
    Have you tried amitriptyline hydrochloride? I use it and after my evening dose I feel no pain until the following afternoon. πŸ‘πŸ˜x
    Thanks for the suggestion, I have tried this without successes. I'm currently taking Tramodol but this doesn't seem to help either

    Leave a comment:


  • Ellie
    replied
    Welcome to the Forum, Baz.

    Numbness, as you describe, isn't really associated with MND - were you diagnosed with the ALS form of MND?

    Don't put everything down to being related to MND - we still get other ailments too. I wonder if a physiotherapist would be of use, given that your GP can't help? What did the Neurologist say?

    Good luck.

    Love Ellie.

    Leave a comment:


  • matthew55
    replied
    Sorry should have said welcome to the livers club. The worst club in town. 😁x

    Leave a comment:


  • matthew55
    replied
    Have you tried amitriptyline hydrochloride? I use it and after my evening dose I feel no pain until the following afternoon. πŸ‘πŸ˜x

    Leave a comment:


  • Baz
    started a topic Head numbness

    Head numbness

    Hello, I'm new to this site having finally been diagnosed with MND in July 2020. I struggled with symptoms for the previous two years but, despite lots of tests, I was assured there was nothing serious to worry about. My biggest problem now, apart from weakness in my arms, is a terrible numb feeling in my head and neck. Despite trying several types of prescribed painkillers, doctors seem unable to offer help. Does anyone else suffer in this way?
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