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Excess Fortisip

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    Excess Fortisip

    My husband's been changed to an overnight pump for his Fortisip. This happened just after a delivery so I have 120+ bottles still in cardboard outer boxes with 2019 expiry date.
    I asked Nutricia to collect them for me, which they agreed to but told me they would have to be incinerated unless I could find a home for them!
    They did say dog and cat rescue cecentres might appreciate them for kittens and puppies.
    It seems a waste, I asked the hospice but they couldn't use them.
    Any suggestions?

    Kernowmum

    #2
    I'm sure poorer nations would be horrified by our 'rules'...

    Hospices of Hope take them for Romania & Moldova, but I've no idea if they collect them or how it works. Look them up.

    Am sure other charities would also gratefully accept them to use overseas.

    Love Ellie.

    PS. The pump is great
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Please may I buy these off you - my mum has been taken off fortisip by her doctor - but she is 97 and only really survives on them. My daughter may be able to collect tomorrow or I could make a special journey.

      Comment


        #4
        Hi Caela and welcome to our forum;

        Seems kind of callous for her doctor to take her off of the only thing she's eating? Do bear in mind that there are different types and extra fiber ones so have a good look at her prescription for them.

        Hopefully Kernowmum will contact you but if not or in the mean time you can buy them online and probably from a chemist.

        They are around £2.30 each so quite expensive.
        TB once said that "The forum is still the best source for friendship and information."

        It will only remain so if new people post and keep us updated on things that work or don't work and tips.

        Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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          #5
          Hi Carla
          Sorry for late response. My husband is in hospital again and I've not checked my messages
          Where do you live?
          I'm sure we can arrange something. I'll check my messages for your response

          Kernowmum

          Comment


            #6
            Sorry to hear about your husband Kernowmum;

            I hope he is comfortable and soon better.

            Hugs Terry
            TB once said that "The forum is still the best source for friendship and information."

            It will only remain so if new people post and keep us updated on things that work or don't work and tips.

            Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

            Comment


              #7
              Thanks Terry
              It's his 6th admission since April with chest infections. He's supposed to be discharged into a local nursing home while we see what happens for a couple of weeks. He was only home 9 days this time following 6 weeks, 3 in hospital, 3 in hospice when He was ill again. Always on a Sunday so out of hours and ambulance which he finds uncomfortable and stressful.
              Nursing home have assessed but CHC haven't approved funding so we have to wait for it to go to a panel which meets Tuesday. So frustrating he's stuck in hospital on an uncomfortable mattress so unfair!
              Rant over
              Kernowmum

              Comment


                #8
                Oh dear;

                Might be worth phoning Mnda connect and see if they can make him a bit more comfortable. Things always happen Friday evening or Sundays when there is no help accessible.

                You have reason to rant, I know how stressful it is caring for someone and the shear time and work involved in getting the right help. So many Jobs worth's.

                Hugs Terry
                TB once said that "The forum is still the best source for friendship and information."

                It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                Comment


                  #9
                  How awful for you!

                  It seems so unfair that you have to fight to make your husband comfortable.

                  Really hope you get the help you need soon.
                  Love Debbie x

                  Comment


                    #10
                    That's tough on you both Kernow.

                    Get onto Patient Liaison Services in the hospital if the Ward Manager cannot provide your husband with a comfortable mattress immediately.

                    I hope he recovers well.

                    Love Ellie.
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    Comment


                      #11
                      Originally posted by kernowmum View Post
                      Hi Carla
                      Sorry for late response. My husband is in hospital again and I've not checked my messages
                      Where do you live?
                      I'm sure we can arrange something. I'll check my messages for your response

                      Kernowmum
                      I have not replied sooner because of your husband's problems - I do hope that you have managed to get him comfortable now. I have also been helped considerably by Patients Liaison in the past and they are normally excellent but I do expect that you know that already.
                      I could come to Andover and meet you some where convenient for you - I would be coming along the main trunk road and I see that there is a travel lodge ''Andover Business Park, Hawker Siddeley Way, Andover SP11 8BF''. would that be convenient? I could make it about noon on Wednesday and I would bring my mum with me in the car so that you can see her. I can do it at other times if you prefer but Thursday is difficult.
                      I do not know how to contact anyone confidentially so I do not want to give you my tel no. Just let me know about a place to meet (if travel lodge not convenient) and when. Caela - i live in the cotswolds.

                      Comment


                        #12
                        Hi Caela;

                        You should be able to click on Kernowmum name on one of her posts and then have the option to send her a private message. You might need to post 5 times to get that facility.

                        Maybe you could ring Mnda connect (0808 802 6262) and they could send your phone number privately to her.

                        Love Terry
                        TB once said that "The forum is still the best source for friendship and information."

                        It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                        Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                        Comment


                          #13
                          Originally posted by caela View Post
                          Please may I buy these off you - my mum has been taken off fortisip by her doctor - but she is 97 and only really survives on them. My daughter may be able to collect tomorrow or I could make a special journey.

                          How far are you located from CB7 5GQ? Please check on the Google map. I too have some. Also ProSource high protein without calories. if you would like I can post (via Hermes - it is cheaper than Royal mail) if you pay me only the postage. Food come free.

                          Comment


                            #14
                            Hi Caela
                            I can make Wednesday but not at noon. The travel lodge is fine but it would need to be a later time, would 5pm be too late?
                            I'll try sending you a private message with my phone number. The private messages are shown at the top of the page under the dark blue banner.
                            Kernowmum
                            Last edited by kernowmum; 31 July 2018, 09:04.

                            Comment


                              #15
                              Sorry Caela
                              Can't message you it won't allow me!
                              Admin any ideas?

                              Kernowmum

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