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    ropinirole hydrochloride

    Interesting read

    http://www.asahi.com/ajw/articles/AJ201810150034.html

    Hope everyone is doing ok

    Dudes Son x

    #2
    Hi Mark

    Hope you are keeping well..it's hard not to think of your dad as I often drive past a property services company in Salford called DUDE Ltd..it makes me smile. I liked your Dad's humour and miss his presence here. Best wishes to you xxx

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      #3
      Originally posted by Boiler68 View Post
      Hi Mark

      Hope you are keeping well..it's hard not to think of your dad as I often drive past a property services company in Salford called DUDE Ltd..it makes me smile. I liked your Dad's humour and miss his presence here. Best wishes to you xxx
      Hi Boiler, great name for a company, yes the silence is deafening without him even though he could not speak anymore.

      Better Crack on as he would say.

      Thanks Mark

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        #4
        Thanks for the link Dudes Son. An interesting article indeed. I hope that this is the start of a shortish research journey. That Parkinsons drug must have already gone through patient safety trials so hopefully they will be able to fast track double blind ALS patient trials. I'll keep my ears and eyes open. Lynne
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
        I'm staying positive and taking each day as it comes.

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          #5
          Thank you for the really interesting link, Mark.

          I have read some of your Dad's posts. He obviously had a fantastic sense of humour.
          Best Wishes to you and your family,
          Love Debbie

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            #6
            Your both welcome.

            See if they can prescribe it here for Restless Leg Syndrome?

            Fingers crossed everyone.

            Mark

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              #7
              I have had Ropinirole recently prescribed by my Doctor. Small 0.25mg to start, I intend to maybe go up to 2mg in a few weeks if well tolerated ? My legs are very weak and interfere with my beauty sleep Ha.
              I will take as recommended just before bedtime as it can cause nausea especially when first introduced. I will report if beneficial.
              Here is more hoping, Best luck all TIANDB

              Comment


                #8
                Originally posted by TIANDB View Post
                I have had Ropinirole recently prescribed by my Doctor. Small 0.25mg to start, I intend to maybe go up to 2mg in a few weeks if well tolerated ? My legs are very weak and interfere with my beauty sleep Ha.
                I will take as recommended just before bedtime as it can cause nausea especially when first introduced. I will report if beneficial.
                Here is more hoping, Best luck all TIANDB
                Very interesting was your Dr aware of the findings in the article above? I know for sure that my Dad would have give it a shot if available.


                Mark

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                  #9
                  Hi DS.
                  My Doctor looked the drug up when I suggested a trial. I have fast onset legs, arms and bulbar. After seeing it on this and other forums and after some research I thought it might help and as I also have sleep problems associated with my legs he agreed. I hope it assists some ?
                  Then we all may know and also my Doctor if he ever gets other ALS patients. Take care all.. TIANDB

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                    #10
                    Hi TIAND, I have also had it prescribed by my doctor at 0.25mg recently and have found to be a bit nauseous. I'll also up the dosage if possible.
                    best Jerry

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                      #11
                      I read and shared the article on this but have been refused this drug for my husband on the grounds that it is not licenced for MND. Fru

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                        #12
                        Fru, it's licenced for use in RLS - Restless Leg Syndrome - which some people with ALS develop.

                        Love Ellie.
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
                        Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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                          #13
                          Hi Fru.
                          If it was your MND consultant that refused try your Doctor or vice versa. I had to talk my Doctor into it well slurr him into it ha.
                          It is not an expensive drug and you start on a really low dosage 0.25mg and slowly build up. My legs are easier to manage while in bed since taking but early days as yet. I am just up to 2mg taken before sleep that is the recommended for restless leg although you can go up to 4mg ( parkinsons users can go up to 24mg ). Take care.

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                            #14
                            Thanks TIANDB, I am seeing my GP in two weeks time (that's the wait here) and I will have a go at getting then. Fru xx

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                              #15
                              Most welcome. I have an e-mail contact with my Doctors due to my voice issues and confined in my first floor apartment. I seem to get quicker service that way although the only medication I am on from the Doctor is Ropinirole ( 13 Days )
                              Best Luck.

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